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Migraine Since I Can Remember

I have had migraines since I can remember, at eight years old, seventy years. They are Chronic Migraines, and I had one stroke with a hemiplegic migraine when I was 45. The migraines can last up to 15 days or even a month at times. I have researched them for years, but as of yet there does not seem to be a cure. I take one day at a time, try to keep a POSITIVE ATTITUDE daily and have a lot of faith.

The migraines are indeed debilitating and interfere with one’s life. They certainly cause depression, loss of work, and interfere with family life at times. I find that some people just cannot understand what we migraineurs go through and offer their own advice — “do or take this or that!” or “Get up, go for a walk or a drive, etc.” I cannot drive when I have a migraine as my concentration becomes affected; I might turn left instead of right, The list is almost endless. For me, I have to go to bed in a dark room, use ice packs, and avoid noise if possible, and take my meds!

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Comments

  • HelenW.
    3 months ago

    Me too! My mother used to tell me that when I was about 3 years old I would it my head against the wall sometimes. She thought it was temper, and the doctor told her to just shut the door and let me throw my “temper tantrum”. Now I believe I may have been having headaches, but didn’t know how to express myself. I’m struggling,too. I’ve tried everything out there except AIMOVIG. Now they are daily, and I am desperate.

  • Joan H
    5 months ago

    I too was 8 when I had my first migraine …that was 60 years ago ! Ice packs, meds and gravol are my best friends.
    Take care.❤️

  • Joanna Bodner moderator
    5 months ago

    Hi there @9xv8du, Thank you greatly for taking the time to share a piece of your journey. I am truly so sorry you have been forced to navigate this horrible disease for so many years. 🙁 In case you would like to explore our forum page (if you have not already) that we have for those that are 50 years & older living with migraine, I wanted to share the link. https://migraine.com/forum/fifty-years-older/. Thank you again & especially for being here. -Joanna (Migraine.com Team)

  • Emma27
    5 months ago

    I will place anything cold on my temple or the side of my head that the migraine is on.

  • Holly Baddour moderator
    5 months ago

    Hi Eleanor- My goodness, what a very long journey with migraine. Thank you for sharing your story and your tremendously positive attitude in the face of a disease that has demanded so much of you. Taking one day at a time is great advice for those of us living with chronic migraine. Sounds like faith has been key for you in your management of this complex neurological disease.

    You mentioned not being successful in finding a cure as of yet. I’m not sure there is any such thing as a one-size-fits-all cure out there, but I wanted to be sure you’d heard of the new treatments that have just been FDA-approved for migraine prevention called CGRP blockers. If you haven’t already, that would be worth discussing with your migraine specialist to see about giving those a try. https://migraine.com/clinical/cgrp-similar-different/ Many migraineurs are having success with those.

    We really appreciate your sharing what has worked for you as it really does help to learn from each other. Thanks again for taking the time to share your wisdom.

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