Status Migrainous

In 2014 I was diagnosed with status migrainous which is a very rare condition in which there is debilitating pain for more than 72 hours. This condition can cause a stroke. My nuero has no idea what caused this. Treatments don't work.. I'm at a loss of what else to try :(.

If anyone here has this condition I'd love to hear your story and ideas for other options.

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