I Will Not Give up Hope

I have been an athlete my entire life - competitive swimmer, figure skater, runner, triathlete, rock climber and have taught all sorts of classes from spinning to aqua classes. When I was 30 (18 years ago), I was diagnosed with migraine. At that time, they would only hit me every few months and I would take a Ketorolac pill and it would go away. Eventually the migraines became more frequent and the Ketorolac stopped working. In time, all abortive migraine medications stopped working.
I have seen two regionally well known neurologists who specialized in headaches. In addition to practically every abortive medication available, I have tried Depakote, Topamax, Neurontin, Tofranil PM, various blood pressure medications, Reglan, Phenergan, Botox, bio-feedback, diet tracking and changes, birth control pills, nerve blocks, acupuncture, chiropractic care - to name a few. Some would work for a while then stop.

I am now seeing a pain doctor who is numbing and freezing nerves throughout my head on a regular basis. This works sometimes. As most people on this site I have been to the ER many times and more than not am treated as though I am drug seeking so I stopped going.
I cannot exercise regularly and this has been difficult for me. I recently had to quit doing hot yoga after doing it for years because it started triggering migraines. I would be lying if I said I don't have my share of pity parties but I haven't given up hope. I started looking in the realm of natural remedies, such as sacral-cranial massage, wearing a frozen cranial cap created for people who go through chemo, use of essential oils and meditation. I went gluten-free, although it hasn't helped the headaches it has aided with the nauseousness significantly. For me, these things have helped with the severity although I still have migraines more than not.
I am very fortunate to work for a company and have a boss who cares about me and my health and have been able to work with me. I started counseling and have been learning how to make self-care a priority in my life and have left toxic people and relationships behind and am embracing my friends and family members who support me and are healthy for me.
I am going to Cleveland Clinic in a few weeks. I have no idea if they will be able to help. The point is that I'm not giving up - I have developed realistic goals in my life given my chronic pain. I have learned that sometimes the best I can do is get through the day and to be ok with that. This website has been a good support for me because I know I am not alone in this painful and frustrating journey. So join me fellow migraineurs in supporting each other so we can all not give up hope.

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