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cefaly

  • By hopeful

    i am new to this forum, please forgive me if this has been covered…..but where and how do you purchase the 3 setting cefaly in the U.S.? Thanks for responding…….

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  • By Nancy Harris Bonk Moderator

    Hi hopeful,

    Welcome to the discussion forum! We are so glad you are here~!

    Cefaly is a device that can be used on a daily basis for migraine prevention. You do need a prescription for this device in the US, and can purchase one here; http://www.cefaly.us/en/cefaly-shop.

    We also have information on Cefaly I’d like to share with you; https://migraine.com/blog/cefaly-questions-answered/ and https://migraine.com/blog/cefaly-migraineurs-review/.

    Let us know how it works for you,
    Nancy

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  • By LindaG

    I have been using a Cefaly for 9 months, but I don’t think it has done anything. My cousin said it takes three months to retrain the brain waves, but I think I am wasting my time. I have an appointment to get a TMS machine by being in a study and hope that will work. I hate the drugs that I have to take and would much rather use a machine!

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  • By Lynn Voedisch

    I have been using the Cefaly machine for 21 days now and already it has made a difference. I get a lot of weather migraines. We’ve had some mammoth air pressure drops and huge thunderstorms and while doing the Cefaly, I didn’t get even a tiny headache. But it’s not perfect. I did get one yesterday and I still have that nasty tension headache that often comes after a migraine.

    However, I am just thrilled at the progress I’m making with Cefaly and can’t wait until it gets to the 6-week to 2-month stage where it’s supposed to make a big difference.

    I know it doesn’t work for everyone and was a little apprehensive before I bought the machine. But I’m very pleased now.

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  • By Anastasia

    I love the Cefaly!!!

    My brother brought me the Cefaly from Canada last year, so I have the one with 3 settings. I usually get migraines 1-2 times a month, and I’ve been using the Cefaly when I feel one come on. So while I haven’t used it daily, I can attest to how well it has worked in stopping a migraine from going full-blown.

    To me, the Cefaly is not uncomfortable. I actually like the feeling, it’s like a scalp massage and I often doze off when using it. But from what I understand, people react to and tolerate the Cefaly differently. A friend of mine finds it unbearable.

    Reading through other user’s comments, I think I might start using it daily to see if that stops my migraines altogether. Any tips on extending the life of the electrodes?

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  • By Nicci

    The positive results are great to hear! My neuro just told me about it, but only because I asked about engaging him and another researcher about a biofeedback device called the Genesis which is being used for pain and FDA approved. I wonder if we, one this site, could organize enough interested people to request a study? Linda, I wish the best for you in your quest.

    I want to try Cefaly, too! Cefaly.Com has more info.

    In health,
    -Nicci

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  • By Lynn Voedisch

    I had a small setback that I hope doesn’t offset my progress with the Cefaly. I got a case of sinusitis and the pressure the sinuses are putting on my head have caused several migraines already. Last night I had a monster sinus attack and then got the worst migraine I’ ve had in my life! I nearly had my husband drive me to the ER. But fortunately the Tristan finally worked.
    Waiting for my regular doc to give me meds for the sinuses and I’m trying to relax. I still did my Cefaly treatment last night and I do believe it’s going to help me in the end.

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  • By Lynn Voedisch

    It was indeed only a minor setback, and I’ve having great success with the Cefaly machine. I’m on maximum power now, and I have to say it’s intense, but not painful or unbearable. Just like a really deep massage that really gets in there.
    It’s been just about six weeks since I started it, and they say that you will see results in 6 weeks to 2 months. Well, I’ve seen great improvement in the six weeks and I think I can look ahead to further progress. Except for that sinus infection attack, I’ve had almost no migraines and the ones I had were 3s in strength. That’s a big difference for me because I was getting 2-3 migraines per week with strengths of 7 to 10.

    Just wanted to report how happy I am, because this is drug-free and working. And if it eliminates or even severely cuts down on my migraines, it will truly change my life.

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  • By Kitty

    I’ve been using Cefaly for 18 days straight now, but unfortunately had migraines on/off for 17 days. I really, really hope that it is not connected. I’ve tried nearly every medication prevention there is to no avail, and I’ve read such good things about Cefaly. I also don’t have any abortives that work for me any more (sometimes Migranal). I did notice Cefaly helps cut some of the migraine pain after use — though I know that’s not the intended use. I’m going to stop using Cefaly for a few days to see if that helps end this migraine cycle. I’ll report back!

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  • By Lynn Voedisch

    Kitty,
    It takes six weeks to two months to see if the Cefaly is working for you. You can’t tell in 18 days if the machine is working.
    However, I must add that Cefaly does not work for everyone. It’s just a fact. I’m one of the lucky ones who is benefiting greatly from the machine, but some people can’t get it to work at all. Also my doctor said that he has a lot of patients that just can’t stick with the program (20 minutes a day, every day), so they don’t get results.
    It’s doubtful that the Cefaly is causing your migraines. You probably would be getting them anyway. And, yes, a lot of people reported that a session with Cefaly does cut migraine pain, even though it’s not supposed to. When I get a sinus headache, Cefaly cuts the pain of that!

    Report back after you’ve been using the machine for a while to give it a fair trial.

    Lynn

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  • By Kitty

    Hi Lynn,

    Thanks for the reply! I’m definitely aware of the weeks to months it takes for Cefaly to become effective as a preventive. I often get asked “is it working yet??” by friends, knowing they don’t understand how long it will really take. -_-

    It’s hard to say if it’s Cefaly or something else causing this long cycle, but Cefaly is the only change I’ve made recently. I think it’s fair to stop the trial for now, then restart to see the results.

    I’ve been very dedicated so far and would remain so, but I don’t know what else to do to end this cycle. I see my neurologist on Friday, so perhaps he’ll have another suggestion. I would like to assume since it takes long for Cefaly to help, it would also take long for it to hurt (if that were the case). Here’s hoping… :[

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    • By Lynn Voedisch

      You could be having a “migraine spiral” and you’ll need special medication to make it stop. I’d stop using the Cefaly until your neurologist can bring it under control. My doctor uses Decadron for those periods of non-stop headaches.

      Cefaly takes a long time to help, but it should never be causing you to hurt. So something else is wrong.

      Lynn

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  • By Michela

    Hello everyone, I am new to this forum and I am writing from Italy, so please forgive my mistakes.

    I am 36 years old and I suffer from chronic migraine with aura since I was 14. I tried all the available preventive migraine therapies in the past, with no long-effects but a lot of collateral effects.

    At present I suffer from migraine about 12 days/month and I use between 8 and 15 triptans each month since a long time (I could not live without my triptan!).

    I have just purchased a Cefaly device and today I tried it for the first time in the preventive mode for 20 minutes (in Italy I can choose among 3 different programs), with a lot of PAIN and some strange collateral effects (not reported elsewhere, as far as I know), some of them long-lasting (I tried it 8 hours ago).

    Even if it was VERY VERY painful for my forehead and face (up to my dental arch), I used the highest power, as recommended in the Cefaly’s instructions, because nothing is worse for me than migraine…I am quite sure you can understand what I mean!

    Among the effects, the treatment immediately caused a very intense aura (moste of all photophobia and smell-phobia) and, within 30 minutes, I started having a very strong migraine attack, so that I had to take a triptan after waiting for 3 hours to see if it was a momentary effect.

    My doctor has not experience of this device and cannot help me, I would like to know if my collateral effects are “normal” and if I can keep on trying the Cefaly, but I don’t know who I can ask for advice, except for the Cefaly customer service.

    The effect I am most worried about is the pain I had during the program at my left EYE, while the right eye was rapidly blinking for about 5 minutes.
    After the treatment, I went on feeling a light pain at my left eye and I have started suffering for a very very strong photophobia (even after the triptan’s abortive effect, that is quite unusual for me).

    I tried it 8 hours ago and I still feel very weak and my forehead still hurts. During the first 2 hours after the treatment, my forehead was hurting a lot.

    I am afraid about these effects and I do not know if I can repeat the treatmente tomorrow…but I really want to give the Cefaly some chances!

    Did anyone experience problems with his/her eyes during or after the Cefaly’s program?

    Many thanks to all of you!

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  • By Lynn Voedisch

    No, no, no! You don’t start at the highest power, you work UP slowly to the highest power. It’s no wonder you are having so much trouble! I have the American version with only one setting, but the instructions clearly say to start low and build up the intensity. Use the 20-minute setting.

    Calm down, feel better and start over in a few days and do it the the right way. You put on the Cefaly and push the button and it will start at low power, it will slowly work up in intensity. When you feel it’s just on the edge of too much, push the button again and it will stay on that low setting for 20 minutes. You keep at that setting until you feel you can go higher. It’s a slow process, but if you are careful, you will see progress. Some people stay at the lowest power for a long time. Do that if you need to.

    I have been using the Cefaly since July 1 and it has pretty much knocked out all my migraines. I used to get as many as you did. Yes, the initial feeling of the Cefaly is a little weird and it will make your hair and eyebrows stand up. All very strange, but keep at it as long as you feel it’s not hurting you. Eventually you will have to make the leap to a level where it feels like a massage that is so good that it hurts, but not a lot. Eventually, at the top setting, it’s like getting a super massage and the electrodes actually keep switching sides giving you this weird “roll-over” sensation. Stay with it.

    Eventually, you will be used to it and you’ll notice the migraines going away or lessening in intensity. I’ve had crazy good luck with this device, but that’s because I use it every day, I was careful with the settings, and along the way I let it hurt a little when it was progressing. (Keep telling yourself that this pain is nothing like the pain of a migraine.)

    My doctor said very few of his patients stick with it, so he hasn’t seen much success like mine. He said some people just can’t take the lightest of the settings. This may be you, but you’ll never know if you don’t start slowly and do it right.

    I hope you are feeling better soon. Then, please be kind to yourself and follow my advice.

    Ciao!
    Lynn

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    • By Michela

      Dear Lynn, thank you so much! Maybe I did my first treatment wrong as I thought the stronger it was, the faster it would produce good results. Actually the Italian instructions are not clear at all about this point, as they suggest to bear – if possible – the pain in order to have a full-power treatment, and I did so.
      I soon had a significant pain when I started the program, so I am afraid I am really “sensitive” to Cefaly, but I definitely will try again tomorrow before going to sleep and I will follow your advice: I will stop the intensity as soon as it will be too painful.
      I will keep you informed, many thanks again!

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  • By Lynn Voedisch

    You are welcome.

    Please stop the Cefaly from increasing in intensity BEFORE it is painful. Just let it go on the lowest setting for a while before you work up.

    Buona fortuna!

    Lynn

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    • By Michela

      Ok, I will do as you suggest, GRAZIE! But what if it will start hurting immediately? Do you think I should try to finish the program as well, if it will not be painful as today? I am confident that it will be less painful (if not at all), as today I felt as my head was about to implode!

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  • By Lynn Voedisch

    I would not worry about something that hasn’t happened yet. Just try it and if it is painful, stop. Don’t finish the program if it is really hurting you. (And I mean real pain, not just being uncomfortable.)

    Then maybe wait a day and try it again. It may take a few days to get used to just the lowest setting. If you really think it’s painful, then maybe the Cefaly is not for you. Over here we have at least 90 days to return the machine for a full refund if we find it can’t work for us.

    Isn’t t there someone you can call at Cefaly with problems? On my U.S. instructions, there was both an e-mail address and a phone number. I’m sure someone there would be able to explain how to gradually get used to the feeling. It’s too bad your doctor can’t help.

    I highly recommend trying slowly to use it, however. It has made such a big difference in my life. I know longer have to change plans or worry that a migraine will break out when I am away from home. We took a trip to New York and normally I’d be worrying the whole time, but I took my Cefaly with me and was pain-free the entire time.

    Lynn

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  • By Michela

    Dear Lynn, your words have helpwd me a lot, thank you so much! In Italy I have 60 days to try the Cefaly and to decide to return it or not, so I definitely will give it a chance. I wrote the cefaly customer service but they replied they cannot help me. After the 1st treatment I did not repeat it, becuase I went on with the forehead’s pain and the strange feelings (like a strong aura) until yesterday. Now I am feeling better and I think I wwill try it again tomorrow, stopping it at the lightest power. I will let you know how it works on me! Best, Michela

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  • By Lynn Voedisch

    I haven’t heard back from Michaela, but I must report that it is now November, I have been using Cefaly since July, and NO MIGRAINES. They don’t even advertise that you will get that kind of success, but it is happening for me. I am faithful about using it 20 minutes every single day, and my doctor said that’s part of the reason for my success.

    One problem that I had this allergy season was that when I got sinusitis, the sinus would press on the trigeminal nerve and then I would maybe get a migraine. (Half the time, it wasn’t a migraine though. It was really hard to tell with pain in that area just over the eye.)

    But now allergy season and I am looking forward to a holiday season with no migraines. Quite a change from the year I woke up on Christmas morning, vomited, and had to go back to bed!

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