Forums


Diagnosis of Migraine & Headache Types

Lightheadedness for 2 months

  • By catlover

    I am new to this forum, but not to migraines. I have had severe lightheadedness with a slight headache across my forehead (varying intensity) for the last two months. Some days it has prevented me from working & the only thing that helps is lying down. I’ve had migraines for 33 years, but this is not like anything I’ve ever had. They have now done almost every possible test now & have ruled out major things. They are thinking that I might have migraines without the headache. The pattern has now become consistent. I wake up in the morning with lightheadedness & it goes away around 1 or 2:00 in the afternoon. It seems like it gets worse or is exacerbated by movement or doing things up & down. They did do a tilt table & said I was fine although, I blacked out. But they said since I never blacked out completely before that they couldn’t use that part of the test results. They have put me on Topamax & are gradually ramping up my dosage. It seems like something is helping this past week. I have been on the medicine for 2 1/2 weeks now & I had one day this past week without any symptoms! I am wondering if anyone has ever heard of something like this? I have been researching auras. I have had them in the past, but I guess I always thought that they were visual symptoms only so I’m not sure if I ever had them before with other symptoms. If it is migraines, I am trying to figure out what this new trigger is. A year ago, I had a complete hysterectomy & am not on any hormones, but have been taking an herbal supplement: black cohosh. If anyone has any thoughts, please share them! I would really appreciate it.

    Reply Created with Sketch. reply
  • By foggyheaded

    Yep. I’m on week six of chronic aura without a headache. I was diagnosed with this seven years ago, and thought I’d gotten it under control but this last episode is kicking my butt. I have foggy thinking, clumsiness, slurred speech (when it’s really bad), blah blah blah. I’m so tired of talking about it. Had to wait a long time to get into the neurologist, but finally got to see her yesterday. She said that there’s no research going into treatment of this so she’s going to treat it like it’s a migraine. I’m now on topimate (sp?) as well. If this doesn’t work, it’s back to getting another E.E.G., etc. I haven’t driven in over a month. I had to withdraw from my classes. I haven’t been able to work. Typing makes it worse, but I hate the isolation. I tried everything I could to get it to go away. It just didn’t work. I’m sorry you are going through this, but you’re not alone. It’s scary to have something that doesn’t seem to be very common. I wish it were so folks would know what to do. I felt better just reading your post. I’ve been really sad the last few days. Hopefully, the medication works for us both.

    Reply Created with Sketch. reply
    • By catlover

      Thank you for replying, Foggyheaded. Seven years??!! Wow! That is hard to imagine. It really helps to know that there is someone else who has something similar. When they did your EEG before, did they find anything? I have been on the Topamax for 3 weeks now & I think it is starting to help. I still am having symptoms, but I think may be it is helping. I hope it works for you. They started me on a really low dose so I don’t have side effects. They started me on 12.5 mg & now I’m on 25 mg. Eventually, I’ll get to 50 mg. Have you had any “bad” episodes with worse symptoms? I have. They thought they might be seizures, but they ruled that out in the hospital when I had an extended EEG. Reading online, I am pretty sure that I have this migraine without headache. They had this as part of my diagnosis, but I’m not sure they are convinced yet. Have you found that you have any triggers? Thank you so very much for replying even though it hurts.

      Reply Created with Sketch. reply
  • By foggyheaded

    To be clear, and hopefully ease your fears, I have not had a seven year long episode. I was diagnosed 7 years ago as having a migraine related disorder. I start the topomax today. The plan is to build up my dosage to 100mg a day. I’m starting on 25mg. My triggers are bright light, being in spaces with a lot of noise or echoes, sleep disruptions, looking at complex patterns (especially first thing in the morning).

    Reply Created with Sketch. reply
  • By catlover

    Well, that’s good to hear! But that is a long time to have this condition even if it is on & off. How did it go with your Topamax yesterday? My doctor suggested having something to eat with it & also in the morning so I wouldn’t get nauseated. It seemed to help with that side effect, but not the others.

    I am trying to figure out triggers for this. How did you narrow down your’s? Especially the complex patterns in the morning? That sounds tricky.

    I hope you had a better day today.

    Reply Created with Sketch. reply
  • By lightweaver

    Migraines were the first issue I to deal with and still have. N ow my MS has taken over my life.
    One thing I have learned is a new symptom matters.
    Have it checked out. My dizziness started with my MS. It is not fun and can be due to many issues and medications

    Reply Created with Sketch. reply
  • By Takingovermylife

    Hi
    I’m new here but I thought I share my experience. I have been lighthearted off and on almost daily since January. A CT in march found an aneurysm that required coiling and a stent. The neurosurgeon says it had nothing to do with my lightheadedness. So in my case I guess it was a blessing in disguise that got me to the doctor and found a more serious issue. The procedure has put me into a migraine cycle that just will not let up. It was 12 weeks ago. The only thing that has stopped it was decatron IV and only for a few days. I went to a headache clinic last week and started on new prevention meds but it will be several weeks before that takes effect. I was wondering if anyone else has been thru this and what has worked for them.i’m not driving and can hardly function. Neurologist said pain meds will just cause rebound and I can only use 4 doses of imatrex injections a month. If one more helpful person gives me peppermint oil I think I’ll scream bloody murder! Lol

    Reply Created with Sketch. reply
  • By Mountainmeg

    Hi – I have painless migraines with auras and cluster migraines since my aneurysm rupture. I have had dizziness to one degree or another since my stent and coils. One thing I’ve found for the dizziness is a very low dose of Valium. I’m talking about half a milligram. Not enough to get dopey for me. I can function.

    Reply Created with Sketch. reply
  • By Anonymous

    Hi—
    Seven mos ago i was told i hv vestibular migraines—no pain but dizziness, double vision and serious mental fog. Put on topamax, no change. Four mos ago, I only began experiencing dizziness of varying degrees. Other symptoms disappeared. These are happening daily—always in the morning. I’ve tried the strict migraine diet, magnesium, vit B2 and am now on 10 mg amitriptyline with no change. Dr wants me to double med but am already exhausted from these episodes plus side effect of med and am afraid I’ll be in bed 24/7. I don’t need to tell you guys how this has completely disrupted my life. Seeing an otoneurologist next month. Anyone else diagnosed with this type? Tried acupuncture?

    Reply Created with Sketch. reply
    • By kgkc4678

      Have you looked into the research for CoQ10 and migraines? Very promising. I take a water and fat-soluble form for better absorption.

      Reply Created with Sketch. reply
    • By DanielStutzman

      My aunt was diagnosed with it. She is also undergoing the acupuncture treatment at Myung Mun Acupuncture & Oriental Medicine. She told me, when you go for an acupuncture treatment the acupuncturist like this will use tiny, sterile needles. The acupuncturist’s technique, and the smallness of the needles means that it doesn’t hurt, and most people find the experience relaxing. The needles may be left in for a while (probably between 10-30 minutes) or they may be inserted and then removed straight away, depending on the style of acupuncture.

      Reply Created with Sketch. reply
  • By Anonymous

    Forgot to mention that I also tried topamax and was so groggy i cld barely function. One grandparent was diagnosed with Menieres and i read in The Headace Cure that this is really a form of migraines.

    Reply Created with Sketch. reply