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Migraine Rx for someone post transplant, immunosuppression

  • By migraine-guy

    I’m looking for any information or stories about people who are immune compromised due to an organ transplant and seeking migraine prophylactic or abortive meds. My wife is a lung transplant survivor of18 years, with CF. Has a fairly high functioning quality of life until this past year when the migraines started and persisted. With aura, dizziness, and sometimes tension headache.

    If you know someone who is post transplant than you understand the secondary conditions they develop from the daily and often neurotoxic medications they take to avoid “rejection”. i.e. diabetes, osterarthritis, osterporosos, peripheral neuropathy, kidney disease, spinal disease, thyroid, etc. Many common prophylactic and abortive meds counter interact with med regime. So her neurologist and pulmonolgists and and other departments are seeking potential solutions.

    Has anyone heard of stories, articles, or blogs about someone in this unique situation?

    by the way… I think I gave her Migraines after several years of marriage.
    All my fault!

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  • By Nancy Harris Bonk Moderator

    Hi migraine-guy,

    Thank you for reaching out and being part of the Migraine.com discussion forum – we’re glad you’re here!

    From the bit of research I did there doesn’t seem to be much information on this topic. I did find this information that may help
    https://www.ncbi.nlm.nih.gov/pubmed/12162928.

    Your wife may want to seek out the expertise of a true migraine expert, rather than a general neurologist, here’s why. Neurologists may be fine doctors but have a hard time being expert in one area because they treat so many different conditions such as stroke, multiple sclerosis, epilepsy, Parkinson’s and others. Migraine disease/ headache disorder experts are doctors who are board certified in headache medicine, which is different than being certified in neurology. When your wife gets a chance have her take a look at this articles on how these doctors are different and how to find one; 2.
    http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.

    I’ll do more digging and see what I can come up with.

    Nancy

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  • By Nancy Harris Bonk Moderator

    Hi migraine-guy.

    Some additional things to consider include:

    Cefaly; https://migraine.com/?s=Cefaly&submit=Go
    Acupressure; https://migraine.com/?s=acupresssure&submit=Go
    Biofeedback; https://migraine.com/?s=biofeedback&submit=Go
    Spring TMS: https://migraine.com/?s=Spring+TMS&submit=Go

    And when you get a chance take a look at our complementary therapy section; https://migraine.com/complimentary-and-alternative-therapies/.

    Nancy

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