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Status migraine for 6 days

  • By absentminded

    I dont typically post on forums, social media, etc but I am so worn down. I’m 28 and the manager of a vet clinic. I’ve suffered from chronic migraines since 2012.

    Anyway, I suffer from migraines weekly, sometimes every other day depending on weather, etc. For the last 6 days, I’ve been dealing with a monster migraine. It finally took me down last Thursday and I’ve been off work since.

    Been taking LARGE doses of Benadryl, up to 150mg twice daily. Magnesium 1000mg, Inderal 40mg as preventative and Prozac 20mg daily for GAD & depression. Finally got my Neuro to fill a Medrol dose pack this morning.

    I honestly attempted to goto work today but am suffering from such severe cognitive dysfunction and nausea, I cannot fathom getting behind the wheel of my truck, driving to work, and running an entire clinic. I’ve only been with my current employer for 9 months, and my boss is incredibly understanding but as an employer, I know he can only tolerate so much and I am petrified about losing my job.

    I’ve talked to my boss and he said terminating me never came across his mind. Still, I am so nervous and scared. I am ashamed that my migraine has impacted my work, productivity, and coworkers to this point. I can grit & bear thru 95% of my migraines but this one has brought me to my knees.

    I feel like the pain and wide range of symptoms has gone uncontrolled for so long, I cannot think straight and feel so alone. My fiance and his mum both think I should be able to grit thru and bear it. The only other time I’ve had a status migraine was last June and I was hospitalized for 4 days to get DHE infusions. I don’t have insurance but am considering inpatient infusions if the Medrol doesn’t help. There are so many worries and thoughts going thru my head. It’s even more frustrating that I can’t communicate them because of brain fog.

    If I could let the whole world know one thing about migraines, it would be that migraines aren’t by choice. I just want this to end.

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  • By Nancy Harris Bonk Moderator

    Hi absentminded,

    Thank you for sharing your story with us and being part of the Migraine.com discussion forum! We’re glad you found us!!

    I hear you and understand how debilitating, exhausting and frustrating migraine disease can be – I’m sorry you are dealing with this. Trying to keep a full time job can be very difficult when living with chronic illness :(.

    When I’m in a nasty migraine cycle, my doctor will give me an infusion to help break it. The infusion can include magnesium sulfate, a steroid, something for nausea and pain. Some other options include;

    Brand name Decadron, or dexamethasone
    Brand name Depacon, valproate sodium
    Brand name Inapsine, or droperidol
    Brand name DHE-45 or dihydroergotamine
    Brand name Keppra or levetiracetam
    ketamine
    lidocaine
    Brand name Phenegran or promethazine
    Brand name Regaln, or metochlopramide
    propofol
    Brand name Ultram or tramadol
    Is this something your doctor can do for you, or is DHE in patient the only option? You may want to talk with him and see if he can offer any of these.

    I’m sorry your fiance and his mom think migraine disease is something to grin and bear, nothing could be farther from the truth! I wonder if they would be interested in reading some information here about how difficult it really is? If so, you can start them off with this; https://migraine.com/blog/migraine-empathy-why-its-hard-for-people-to-get-it-and-how-to-help/.

    Please let me know how you are doing,
    Nancy

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  • By Nor

    Dear absentminded,

    I can relate to your plight. I used to suffer from such excruciating pain that even the slightest movement was unbearable. I can certainly understand why loved ones think migraine sufferers need to toughen up when the going gets tough. They don’t know and can’t imagine the degree of pain and the whole lot of symptoms that accompany the pain, that we migraine sufferers go through! I’ve had friends and family members commenting “You’ve had migraine almost your entire life; surely you have learned how to deal with it if medication doesn’t work”.

    I am from Singapore and a teacher by profession (I teach chemistry to 13 to 17 yr old). My bosses are not that understanding and forgiving. So do some colleagues. The worst episodes occurred last year, towards the end of the 6th yr of my perimenopause phase when I collapsed from exhaustion, insomnia and excruciating pain.

    I don’t know if you would believe this. I have found relief from migraine with blood type diet. The effect is better with regular physical exercise. Meditation exercise such as yoga has worked for me as well. However, all my doctors (neurologist, gynaecologist, orthopaedic, gastroentrologist and general practitioner) brushed off this diet as utter rubbish with no scientific reasoning. My take is, blood type diet provides my body with all the essential nutrients if I include all the various food group in every meal. You eat the recommended food according to your blood type, abstaining from all that’s forbidden (reason being they harm your body in certain ways). You may want to read up on this diet for details. By the way, I’m 52 yrs old and still employed in the teaching profession. Pain-free, with high spirit and boundless energy, I am better equipped to deal with insensitive people who think migraine is just a normal headache that will go away each time you swallow paracetamol, hence there is no reason to miss work!

    I sincerely hope you’ll find relief from your suffering.

    Lots of Luv,
    Nor

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  • By migrainesaretheworst

    Hi absentminded,

    Hope you finally got some relief. I’ve had a migraine for just shy of 5 weeks now and can definitely relate. No abortive medications work. On day 2, it was severe enough to send me to the ER in the worst pain I’ve ever experienced but the hospital was only able to bring the pain from a 10 to a 3 and since then, it has waxed and waned, never quite going away. I live every day wondering if this is just going to be my life now. I used to be a competitive athlete, now, I barely have the energy to get through the work day. I don’t know what brought this migraine on or why it just won’t break. It’s a horrible, powerless feeling that no one really understands. Even other migraine sufferers don’t get it since most haven’t had the sort of headache that lasts longer than a couple of days. Anyway…you’re not alone, if that helps any.

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  • By Nancy Harris Bonk Moderator

    Hi migrainesaretheworst,

    I’m so sorry to hear you’ve been dealing with migraine pain for so long. Chronic pain is exhausting and frustrating.

    It sounds like it’s time for the doctor to come up with a new plan to break it! When I’m in a nasty migraine cycle, my doctor will give me an infusion to help break it. The infusion can include magnesium sulfate, a steroid, something for nausea and pain. You may want to talk with him and see if he can offer any of these. Some other options include;

    Brand name Decadron, or dexamethasone
    Brand name Depacon, valproate sodium
    Brand name Inapsine, or droperidol
    Brand name DHE-45 or dihydroergotamine
    Brand name Keppra or levetiracetam
    ketamine
    lidocaine
    Brand name Phenegran or promethazine
    Brand name Regaln, or metochlopramide
    propofol
    Brand name Ultram or tramadol

    Please keep me posted on how you are feeling,
    Nancy

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  • By migrainesaretheworst

    Thanks Nancy! Appreciate the advice and support.

    I did see the doc for an infusion, but it unfortunately didn’t break the migraine. I’d definitely be up for trying another – perhaps a different combo of drugs – but I moved recently and am now a 4-hour uber+train+walk away from the doc, which is a trek even when feeling good. It was extremely draining getting to the doc for the first treatment and given its limited efficacy and the ultimate toll it took, I can’t justify making another trip. At this point, I need to wait until a new doc – one that is local – can see me next month. I’ll definitely plan to ask about Aimovig as it sounds like some folks are having positive early results. It’s about time a medication was developed specifically for migraine!

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  • By absentminded

    Nancy, thank you so much for the advice. I’m intending on going to the doctor’s once I get paid and asking for a Topamax RX, Zanaflex RX, and some antimetic.

    I’ve heard infusions are super helpful but the only place near me that gives them charges close to $300 for a magnesium infusion.

    Migrainearetheworst –
    I am so sorry you be had a migraine for 5 weeks. The longest I’ve had one was 10 days so I can’t even imagine 5 weeks.

    Have you considered inpatient treatment with DHE 45? I was admitted to hospital last June for treatment. Man was it brutal but the IV phenergan helped SO much. Same with the DHE; although the aide effects were something made of nightmares, it actually, truly helped.

    Seriously, consider inpatient care. It’s incredibly assuring know someone else has such monstrous, persistent migraines. Yea, my family helps me out during attacks but they don’t understand HOW I’m feeling.

    Had to call out of work for tomorrow. There’s no way I can drive, perform blood draws or talk to people without seeming utterly sauced. My boss is understanding but I know it’s an inconvenience.

    I hope you get relief soon. When you said you wonder if this is how your life is going to be from now; I totally get how you feel. It’s such a crappy way of thinking but how can we not think like that?

    It never feels like it ends and that’s the worst. I hope you don’t mind, I sent you a friend request. Please feel free to message me if you need to talk. Thank you for replying to my post!

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