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Medications & Prescription Treatment

Will it ever end?

  • By NickD87

    Hello I’m nick I’m new to this forum, alittle about me I’m 29 and have been suffering with headaches and migraines my whole life. I can remember around the age of 5 or 6 my head always hurting. As I got older they got worse I would always throw up after a bad headache and it would last all day! Around the age of 9 I went to a specialist they hook some things onto my head to check my brain said I was fine I think maybe a eeg or ekg? The doc said lay off the caffeine and salt. So here Iam now 29 years old still suffering but I rarely throw up from them I just lay in debilitating pain as if I’m dying as the more I move the more it hurts my head. Some times I get a warning in my eyes I get thoses squiggly things floating and sensitive hearing then I know I’m in for a day of fun filled pain. For my the pain has always been behind my eye or booth never actually on or in my head or brain. I always feel like I’m falling into depression when I get them I can’t do anything without hurting. I have to lay there and waste my day till the pain goes away enough to function my everyday life. Weird question but does anyone get a weird epiphany type feeling after there migraine is gone like I feel on top of the world and I need to tell my wife and kids I love them type feeling? It’s hard to explain in words I feel as if it’s linked to some kind of chemical imbalance or something neurological. If I’m lucky I get them every other day. I’m just so sick of it, it effects my way of life with my wife and kids and me! All I got the docs said I have complex migraines and what kind of help is that? I did the food daires and everything but I feel I’m doomed for the rest of my life or until we advance further in Medicine and find cures and causes of these god forsaken acts of torture on my head. I don’t drink anymore because I don’t want another head ache I avoid fun because I don’t want another head ache it’s running my life. All my friends and family will never understand I know you guys do! So sorry for the rant needed to get that off my chest and thanks for listening to me and if anyone has any pointers please don’t hesitate
    Thanks nick

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  • By Nancy Harris Bonk Moderator

    Hi NickD87,

    Thank you so much for sharing your story with us and being part of the Migraine.com discussion forum – we’re glad you’re here. Let’s see what information I can give you that may be helpful.

    Migraine can be debilitating and exhausting. I’m sorry you are having a rough time. It’s also thought to be a genetic neurological disease with a migraine attack being triggered by some sort of stimuli. These stimuli or triggers can include but are not limited too certain foods, alcohol, smoking, changes in the barometric pressure, an irregular sleeping pattern and many other things. I see you mentioned keep a diary – good for you. If it’s been a while since you’ve kept a detailed migraine diary I would encourage you to keep one again. Reason being our migraine triggers and patterns can change over time. You can read more about that here; https://migraine.com/blog/keeping-migraine-diary-basics/.

    If you haven’t seen a “true” migraine/headache expert it sounds like it may be time. These expert doctors are different from neurologists in that they are board certified in headache medicine which again, is different than being certified in neurology. Neurologists may be fine doctors but have a hard time being experts in one area because they treat so many conditions such as stroke, epilepsy, multiple sclerosis, Parkinson’s and others. Migraine/headache experts treat one condition all day, every day – migraine and headache disorders. I’ve been seeing yet another true expert since August and I think this one is making a difference. When you get a chance take a look at this information on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.

    You’re right, we do understand how hard it is to live with migraine disease and this is a safe place to vent.

    Will you let me know how you are doing?
    Nancy

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