Take the TripIn the days leading up to the first vacation I’ve taken since 2016, I really wondered what I had gotten myself into and hoped I was not making a huge... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments4 comments
Is Advocacy Really What You Think?When I say the word advocacy, what picture comes to mind? Do you envision standing before a committee in Congress testifying? Do you imagine you have to have a perfect... By Anna Williams4 min readBookmark for laterReactions 0 reactions Comments3 comments
Headache Diease and Sweet Remission - Now What?My journey has been brutal since 2017 adding many new diagnoses and struggling to manage. Balancing chronic cluster headache, SUNCT, trigeminal neuralgia, migraine and vestibular migraine has really been challenging... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments0 comments
Clusterbusters: The Importance of HopeAfter two years of meeting virtually, Clusterbusters had an in-person conference. My brain was full of questions and concerns about traveling, meeting others, and fitting in. However, all of that... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments0 comments
Surviving Well with Chronic Cluster Headache DiseaseCluster headache disease can be episodic or chronic. While the primary symptoms are the same, the chronic version can have different presentations that make it tougher to manage. With episodic... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments0 comments
SUNCT - Discovering a New DiagnosisHow do you navigate experiencing new symptoms? How do you handle it when your doctor doesn't know a diagnosis or a treatment plan for the new presentation? I experienced this... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments0 comments
What are Cluster Shadows and Ghosts?People who experience cluster attacks often have pain outside of the traditional attacks. While the cluster attacks are completely debilitating and the pain is excruciating, shadows and ghosts are a part... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments22 comments
Preparing for the Next AttackEver have a plan? Ever have that plan get ripped to shreds? I know you do because if you are reading this, you probably have a devastating disease as well or know... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments3 comments
Teaching My Kids It's Okay to Say You Aren't OkayI have two teenage daughters who are amazing human beings. As their mom, I know I am biased! Over the years, my parenting has changed. In the early years I would push... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments4 comments
Migraine vs Cluster Headaches: What’s the Difference?I experience two primary headache disorders: migraine and trigeminal autonomic cephalgia (TAC). My migraine started developing when I was 10. I developed cluster headaches, a member of the TAC disorders, in... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments45 comments
What Does the Trigeminal Nerve Have to Do With It?Whether you have cluster or migraine attacks, you quickly learn they are more than just a headache. One of the many parts of the head that gets triggered during an... By Anna Williams3 min readBookmark for laterReactions 0 reactions Comments11 comments