Hi Sarah
Thanks for replying.
Yes, my wife went through every test possible and saw every specialist (as described in my original post). It was a true nightmare so I understand all you are going through.
HOWEVER, we now have our diagnosis. We were at our wits end and went to see an ENT even though we knew she had no sinus issues. This particular ENT though happened to work with a Neurologist who specializes in migraines and other type issues. She seems a lot of his patients via referral and said in about 3 minutes to my wife "you have occipital neuralgia." As we were not sure to believe such a simple diagnosis as this is not her field of work, she made a call and got us to see a PT (Physical Therapist) she know works with the neurologist's patients, got us right in and he then pressed his finger on the back of her neck on a nerve and said the same thing. Her pain went away instantly when he pressed. He then in turn called the actual neurologist for us and got us right in and they did the same thing, diagnosed her and simply said they see this all the time and it is easily overlooked by many professionals.
While it will take a bit of time for the headaches to go completely; as it needs a series of injection to relieve the nerve pain in conjunction with phys therapy, at least she is either headache free of has a minor normal headache on any given day sine (has been over a week now). Soon, the nerve will be healed right and the phys therapy will keep her in check as not to damage it again.
I know there are folks who have regular migraines with no rhyme nor reason, but this something I think anyone who suffers from chronic migraines should look into. Not to say they all have this issue, but since it is so easy to overlook, maybe a few of them out there do and it is something that can be treated and the pain goes away fully.
Thanks for writing Sarah. I hope you have some headache free days soon.
Paul