Hi, my name is Sarah. I have come here really hoping to get some advice regarding medication. Since being diagnosed with MAV I have tried Propranolol, which did work (for 3 months) but then the dizziness came back and rather than go to a higher dose I asked my GP if I could try Topiramate instead. This worked well for the dizziness too but ended in disaster with my hearing zoning in and out (not completely), hyperacusis, a blocked ear feeling, ear pain/pressure and numbness. It took three weeks after discontinuing to get back to (almost) normal after this.
I went onto Betahistine then, which caused no notable side effects but didn't really work either.
I then tried Venlafaxine but had the blocked ear feeling and sensitivity (and slight tinnitus) and had to discontinue after less than a week.
I have now been prescribed Zonisamide and on the 5th day my glands feel swollen in my neck, the back of my head hurts and my ears feel very painful and like there is pressure round them!!!
What I really want to ask is
1) Has anyone else had this problem with different medications (or am I really awkward)? And if so, what did you find that you could tolerate?
2) Are these side effects that I should just try and push through or do they mean I need to give up with the Zonisamide?
Any advice would be gratefully received, I haven't been able to get a satisfactory explanation on why this happens.
Sorry this post is so long, it wasn't meant to be😀