Chronic Daily Migraines

Hi there- thank you so much for sharing some of your migraine journey with us. I'm so sorry you are in the midst of an intractable attack, perhaps triggered by your recent vaccine. It does sound like you are in capable hands with your neurologist (do you feel good about that relationship?). Ajovy is a frequently used preventative, as is Topamax. I'm not sure which infusions you are referencing. But, there are some common strategies to stop an intractable migraine which include a steroid dose pack (for those who can tolerate steroids), a series of nerve blocks, or an injection of Toradol (which some doctors can administer in office - it's otherwise available in the ER but can also be prescribed at home for those comfortable with self-administering an injection (if your doctor is willing to prescribe it). As far as other overall approaches to managing migraine, there are a number of preventative and rescue medications, but I'm not certain you were asking for those. It sounds like you are perhaps overall happy with your current treatment regimen - it's just that you've gotten tripped up into a really tough attack that needs stopping. Is that correct?
I'm with you in never experiencing a crystal clear day- I've been living with chronic migraine for decades and am in some level of pain 24 hours a day- it's just a matter of severity. We are absolutely here for you to provide support and information anytime- and are so glad you are with us. We look forward to hearing back from you and send our compassion and hopes this attack will ease for you soon. Warmly - Holly (team member)

Thanks for your reply Holly, the infusions are auto immune and apparently new (I’m in Ireland) and will be available sometime next year. It requires a few hours in hospital and I’m hoping they will work. I didn’t know about Toradol and will ask my GP if it’s available. This throbbing attack has knocked the stuffing out me.

Hi Melissa, thanks so much for checking in with me. It’s been a really rough time I won’t lie and the last few days spent mostly in bed. I had a real low point last night and I emailed my Neurologist and my husband who has been such a support and it’s not used to seeing me so low said he would ring their office this morning to see if they received the email. The receptionist initially said they were booked up until March but he pressed upon her how serious this was. Shecwas very good and said she would get back to us tomorrow but we received an email this afternoon saying they would fit me in for an emergency appointment on Thursday. I’m hoping he can give me through this difficult period and apparently I’m on the list soon (whatever that means!) for,the IV’s which are Vyepri I’ll be pressing upon him how bad this attack has been and hoping he can bump me up on the list. As you know when you were feeling like this, it just impinges completely on your life they’re under control. I’m up and about and very busy with Life two sons abroad and coming home for Christmas with their lovely wives and usually at this time, I’m busy preparing the house shopping for Christmas, et cetera, and I’ve just lost three weeks ! I really appreciate you checking in you have no idea what that means to me x