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Constant headache for 2 1/2 years

My husband has had a bad headache since Sept 2018. I have read online about chronic headaches, which can be 15 days a month, but he hasn’t had a day without a headache since it all started. He was in the hospital for 6 days in Oct 2018 as they suspected a brain tumor, but MRI, CT, and MRV scans didn’t show anything.

Doctors just keep changing his meds, but nothing gets rid of it. Has anyone else suffered constant headaches for such a period of time?

  1. Hi ,

    Ugg, that's so frustrating. Living with daily head pain is exhausting. I'm afraid your husband is not alone, there are many of us who live with daily head pain. That doesn't make it any easier for you and your husband, but knowing you're not alone is important.

    I think it's a good idea to see a doctor who is an expert in treating migraine and headache disease when we have daily head pain. These expert doctors are certified in headache medicine, and not all neurologists are. General neurologists may be fine doctors, but have a hard time being experts in one area because they treat so many conditions such as epilepsy, multiple sclerosis, stroke, Parkinson's and others. Let me share information on how these doctors are different and how to find one;
    These expert doctors will also be able to give your husband an accurate diagnosis, which is vital so he can get the correct treatment and learn all he can about his particular type of headache disease.

    Please let me know what you think,
    Nancy Harris Bonk, Patient Advocate/Moderator

    1. I am in the same boat as your husband. I have been on multiple medications and finally have an appointment to try Botox treatment next week. I have also just started having sessions with a chiropractor, the first session he advised tension in my neck and so did a massage... I slept amazing that night unfortunately the past 2 sessions haven't had the same effect but it definitely helps loosen the muscles of tension which may reduce the severity of pain slightly?

      1. Hi ,

        Many people do find some relief from chiropractic treatments- I am glad to hear you had that experience the first time, and I hope you will be able to replicate it.

        Good luck with your first session of Botox! Do keep us posted on how it all goes for you. We would be interested to know!

        Melanie (team member)

    2. Its awful isn’t it. I hate watching him struggle with every day tasks all the time due to a constant thundering headache. They are now trying beta blockers before possibly moving onto nerve block injections and Botox has been mentioned. I hope the Botox treatment gives you some relief!

      1. , I am sorry to hear how much your husband is struggling. Do keep us posted on how the Beta Blockers and/or other treatments work out, we would be interested to know.
        Warmly, Melanie (team member)

    3. Thanks Nancy. We are in the UK, but I will see what I can find out about specialist migraine doctors

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