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Constant Headache - Hemosiderin Deposition in Brain?

Hi all,

New to the forum and first time poster. I've sufferered from headaches since middle school (currently 30 years old). I remember being in 6th grade and getting my first migraine with aura.

Every year I will get a few migraines with aura. My main concern though is the constant daily headaches I've had for over a decade.

Went to a neurologist in my early 20's and had a MRI done. Doctor said nothing was noteworthy, and that I was just a "headachy person" and they might get better with age. No luck.

Recently, I was actually able to get a hold of the results from my MRI, and had some concern. The results mentioned that there was "evidence of dark signal compatible with abnormal intracranial hemosiderin deposition".

The only information I've been able to find on this has said that hemosiderin deposition is a result of previous brain bleeding. Could this be something that might be related to my constant headaches? After the neurologist I just figured there was no medical explanation for my headaches.

This has me worried and I'm wondering if I should try to see another specialist.

  1. Hi @ HeadacheQs.

    Welcome to our discussion forum!! We're so glad you reached out with your story.

    I'm not familiar with hemosiderin deposition and am unable to comment on it. I can say anytime I'm concerned about a health issue, I continue to seek care until all my questions and concerns are addressed, even if that means seeing a number of experts.

    I agree, the decade old head pain needs to be addressed. It may be worthwhile to seek out help from a doctor who is an expert in treating migraine and headache disease. These expert doctors are board certified in headache medicine. General neurologists may be fine doctors, but have a hard time being experts in one area because they treat so many conditions such as stroke, epilepsy, multiple sclerosis, Parkinson's and others. Let me share information on how these doctors are different and how to find one; https://migraine.com/blog/really-find-headache-specialist/ and
    https://migraine.com/blog/seeing-a-board-certified-headache-specialist/.

    Please let me know your thoughts! I wish you a low pain weekend,
    Nancy Harris Bonk, Patient Advocate/Moderator

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