i have alawys been told that a migraine was a migraine no other name and no matter how long they lasted.so up till afew years back i thought i had went crazy couse i didnt have one or two day with it they lasted for a week or longer. the longest was a little over a month .
i have migraines. then told i have black spots on my brain then i have cluster migraines. no one even trys to understands how i feel about all this. i have a list of other things wrong with me and am trying to get my SSD/SSI cause its so hard to do anything even going to the store is hard cause of never knowing when it will happen. i use to have a life i was a home health caregiver , train dogs. even trained some cats to play feach. now i have to be so careful about everything cause i never know when or where the next one will happen.everyone says they can feel one coming on .i have never been able to tell so i am always afraid of when the next one will be. when i do have one my head feels like my head is boiling with heat even when the rest of my boby is cold. i have to use ice packs all over my head get in the darkest room and pray everyone else will make no noise,i even use ear plugs but even my heartbeat is to much for me to stand. no one understands any of the pain i go through or that migraines last for days,weeks or as long as a month. i go to sleep with fear and wake up with fear of the migraines and the pain that they cause but with the rest of my body pain the migraines makes the other pain worse too! i don't know what to do about any of this stuff.how can i get anyone to feel how i do they wont even try to understand it.i am more than stuck i have been stop in my tracks. my life is over with! i can not get help with migraines and i can not get the court to understand my pain is all over my body add those two together and it is endless pain .so how am i to deal with this?with my family,friends and doctors make me feel like it is really am crazy or just all in my head.to fine this page where there are others that could understand and know how i feel gives me hope something i have not had in over 30years