KarenM65
First was put on propranolol, worked at decreasing my migraines for awhile, then they increased again. Then put in amitriptyline, came thing, helped for awhile then migraines got worse. Then put on gabapentin, that didn't take so anything for my headaches but it does help me sleep. So I'm wondering if I need to be in all these medications if they ended up not working very well. Doctor says yeah but I hate being in all these medications.
Nancy Harris Bonk Moderator
Thank you for sharing your experience with us. I understand how frustrating it is to live with migraine disease and needing to take medications every day - it's exhausting.
The thing is it's important to get the right treatment as soon as possible and here's why - episodic migraine (14 or fewer migraine/headache days a month) can transform into chronic migraine (15 or more migraine/headache days a month) fairly quickly, without proper treatment and no one wants to be chronic! This means if we have four or more severe attack a month we need to discuss migraine prevention with the doctor.
Propranolol and amitriptyline are typically first line treatments for migraine prevention. Please don't lose hope there are over 100 medications, supplements, devices, complementary therapies and lifestyle modifications that can be used to manage migraine disease and most of us are on a combination of these, I sure am. And we may not have to be on medications for our entire life. Here's a starting point - https://migraine.com/blog/migraine-preventives-start
One of the more frustrating things about migraine management is it can take a while to find the right combination of medications, supplements, devices, complementary therapies and lifestyle modifications before we see a reduction in attack frequency and severity - hang in there.
I also wanted to mention it's important to have a doctor who is well versed in migraine and headache disease here's why - general neurologists may be fine doctors but have a hard time being experts in one area because they treat many conditions such as stroke, epilepsy, multiple sclerosis, Parkinson's and more. A true migraine/headache disease doctor treats migraine and headache all day, every day and have additional certification in headache medicine not all general neurologists have. Here is more information on how these doctors are different and how to find one;
1) https://migraine.com/blog/really-find-headache-specialist/
2) https://migraine.com/living-migraine/neurologist-vs-specialist
3) https://migraine.com/living-migraine/change-thoughts-new-care
4) https://migraine.com/living-migraine/evaluating-doctor-patient-relationship-right-fit
I'll stop now so I don't overwhelm you. I'm sending you pain free wishes and please let me know what you think, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team
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KarenM65 Member
Thank you for your response. I guess for now I'll stay on all these medications, maybe each one is doing something. Just seems like my migraines sooner or later get used to the drugs and come back full force
Cody Leach Community Admin
Rebecca C Moderator
Discussing the effectiveness, side effects, and overall impact of the medications you are currently taking is an important conversation to have with your doctor. They may consider adjusting dosages, exploring alternative medications, or reassessing the overall treatment plan. Asking questions and proposing a change in treatment is being proactive.
Additionally, lifestyle changes, stress management techniques, and other non-pharmacological approaches may also be discussed as part of a comprehensive migraine management plan.
Remember that your well-being is the priority, and finding the right balance in your treatment plan is a collaborative effort between you and your healthcare professional. Hope this is helpful. Thoughtfully, Rebecca (community moderator)
ix3jvy Member
Do they start primarily in the back of the head? I went through all the medications, and nothing worked and side effects a nightmare, turns out I had cerviogenic migraines. I now get facet joint injections. It took 10 + years to get the diagnosis, and a pinched nerve to get the shots approved. Please do a migraine journal and note what happened while on the medications, and please look at the side effects of the drugs they give you and write them down too. Also along this journey I found out I cannot take supplements and vitamins they would actually double the amount of migraines.
Alene L. Brennan, RYT Moderator & Contributor
You make a great point about doing a migraine journal. Many people in our community have had a lot of success with them, so thanks for that reminder.
In fact, here's an article that talks a bit about journals and I also wrote an article with some journal prompts.
https://migraine.com/blog/using-a-migraine-diary-can-be-a-real-wake-up-call
https://migraine.com/living-migraine/journal-prompts-for-chronic-pain
Thanks for the note about supplements too. It's true, for some people they can bring tremendous relief, and for others it can be the opposite. When it comes to managing migraine, it's so individualized.
Thanks again for sharing your story and for raising these important points.
Best
Alene, moderator