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Holly Harding
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Migraine attacks can feel scary. In the face of severe pain and complex symptoms, everyone responds differently. Some want to be alone while laboring through it. For these people, having anyone else to interact with is too much to handle- it can feel like giving energy one doesn’t have. Others find safety and security in having someone nearby. For them, it is upsetting to be alone while navigating severe pain.
Which are you and why?
mysticlyon Member
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Holly Harding Member
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Please do circle back regarding the MRI results on Tuesday. We'll be thinking of you, for sure. I'm confused- is the Betahistine related to the MRI or a separate issue? Is the availability of that drug related to a shortage or that you fear your doctor will no longer want to prescribe it for some reason? I just did a quick search and see there does appear to be a shortage but there are some alternatives available (though never fun to change medications!).
And how interesting that your migraine presentation has changed! Me too! Nausea first for me, as well. Then neck, then head pain. Used to be neck pain first. To what do you attribute that shift for you? For me, I think it's that I started taking Qulipta.
Hope to hear back from you Tuesday, if you have time. Thinking of you and sending love. Warmly - Holly (team member)
Melissa Arnold Community Admin
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azreynolds Member
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Holly, I prefer to have someone home because of that awful freezing up thing that's happened a few times, but they have to be quiet!! Of course that rarely the case because hubby is still working someone, but hopefully this will change soon.
Holly Harding Member
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Second, I've been wondering about the Marc Cuban CostPlus Drug company. So, it's a little like GoodRX in that it bypasses insurance by it's by mail only? And how bizarre about the phenergan being dropped given how frequently you use it! We have this in common. Will you please let us know how things go with CostPlus? I'm most interested in hearing.
Any update on still qualifying for the Aimovig Savings program? Thanks so much for chiming in with this helpful information. All love to you - Holly (team member)
Melissa Arnold Community Admin
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kateymac Member
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For me, it’s depends on how long the migraine lasts. If the very severe pain of migraine lasts for several days at its height, then I prefer to have somebody there. But it has to be somebody who really understands, who will sit quietly and just be a supportive presence. Luckily, I do have one or two people who can do that. I do have migraine pain every day, but I’m talking about when it’s at its worst. In the short term it’s easier to be alone. But it gets a little daunting after three or four days.The overall loneliness of this illness can be very hard to take sometimes, even on the “easier” days.
Kate 🌷
Tracy Hannigan, MOstMed, ACE-HC Member
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mysticlyon Member
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Nancy Harris Bonk Member
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Thank you for your support and information! This is part of why this community is so wonderful - all the support!
Hoping today is a low pain day, Nancy Harris Bonk, team member
Tonya Henry Member
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