Hi all. I am new to this site. I joined because I'm feeling very alone in dealing with everyday pain and lack of understanding from friends/family and my doctor.
A little about me, I was diagnosed with migraines in 2001, but had headaches since I was 16. I'm 38 now. At that time my doctor tried me on Imitrex and Relpax, either of which didn't work. He then started treating the pain with hydrocodone, which I was to take at the onset of a migraine. And it worked. However, I was needing more of the medication more often and came to a point where I was tired of feeling "drugged" all the time. Asked for something different and he put me on Topamax. It worked well, but soon into treatment, I was in the ER with a kidney stone. It was attributed to the Topamax, so I was told to discontinue. Back to hydrocodone.
My doctor ended up moving and I started with a new one. Immediately I knew we would have problems. She immediately took me off hydrocodone because she doesn't prescribe them for"headaches." Since then she has refused to acknowledge that I have migraines. She said it's sinus related, then it was due to tight muscles in my neck, but never migraines. I kept pressing and am now on propranolol er and tramadol every day. The propranolol has helped with my fast heart rate, but not migraines. I have been to the ER so many times because she refuses to give me a shot of morphine for a"headache."
I am at my breaking point with her, but because of my insurance, it's been hard to find another doctor. I begged her in an email yesterday to please put me on a migraine preventative. She responded with Topamax, 50 mg at bedtime. I am hesitant to try it again because of the kidney stone last time, but desperate. I've heard it works for a lot of people. I am wondering if I should start at 25 mg though? It seems like that's the typical starting dose. As you probably can tell, I don't have a lot of trust in my doctor and wonder if I'm doing the right thing. I just can't keep going through this pain. I have no life. Thank you all for listening and I would appreciate any advice or feedback.