Happened 4 days ago

Hi dear Susan- it's so good to hear from you though I'm so sorry you experienced such a scare. It sounds like you (reasonably) have some PTSD around that period of your life when you were bedbound by migraine such that when you felt you might be slipping back into that place you became terrified on top of the actual painful experience of the migraine itself. That makes all the sense in the world.
In terms of what you did or could've done differently---first, you did the absolute right thing to reach out to your doctor for support and guidance. I'm just so sorry you were met with little to no help. In a perfect world, you would have a good relationship with your doctor who would've been willing to brainstorm an intervention strategy to assist you with your intractable attack. These kinds of interventions generally consist of the kind of IV treatment that is given at the hospital but given instead at your doctor's office. Or, a nerve block or prescribed run of steroids to stop the cycle of inflammation. Or, an injection of toradol in the office. Finally, when we're not in an emergent place, we want to brainstorm with our doctors about ways to avoid this kind of escalation of pain in the first place- are there interventions we can have at home that can keep us from reaching an emergency situation? For instance, I am prescribed toradol injectables because I was going to the ER so much we decided it was better for me to have them at home. It may be, for you, given your history, that having something like this in your arsenal would put your mind at ease for those times when your attacks become intractable. Ultimately, all these things are contingent on a healthy relationship with your migraine doctor! When that is missing, everything becomes more difficult. So, I join you in celebrating this person's retirement. Do you know who the replacement is going to be?
I'm not sure exactly what you meant when you said you've learned you were taking your medications incorrectly, but hopefully that adjustment has helped with the frequency and severity of the attacks you are experiencing. Of course, going to the ER is the last place anyone with a migraine wants to end up, but it does happen- and is an option.
We are here for you, as always- and again so sorry for what you went through. Please stay in touch. Warmly- Holly -migraine.com team.

Susan, I understand how scary and anxiety-inducing those prolonged attacks are. My husband frequently has attacks that drag on for days despite taking his medications. There is a noticeable change in him during these cycles, and I am scared, anxious, and frustrated right along with him! I'm glad you took the time to vent and get these heavy burdens off your chest. I know you've had issues with OHIP, and I was hoping a way to utilize the benefits would become available to you sooner than later. There are always options for us for ways to manage migraine. Finding the right medications and using them in ways that benefit our bodies most can vary. I hope you find a way to use your meds that benefit you. Holly has given you some great information. As always, you know we are here for you. You are stronger than you can imagine, Susan! Remember, this too shall pass. I'll keep you in my prayers. Warmly, Cheryl migraine.com team

I wanted to check in and see how you are doing? Please know we're here for you! Wishing you a low pain day, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team