1) TSH of 11 just came up on a blood test after being subclinical hypothyroid between TSH 5 and 10 for past three years. Which means I may be hypothyroid.
2) I had a blood clot in my shoulder in January which put me in hospital for ten days that has been noted as cleared by doctor this month after testing, and I am now off blood thinner Eliquis.
3) Headache history: once every few years or so I have had a migraine that would start with a wiggly aura for 30 minutes or so before dissapearing and a painful (8 out of 10, 9 out of ten headache) would start for a few hours. Really once in a blue moon, though. Under ten in my life.
Long story short: I have had headaches since February, unending even with the help of a neurologist and types of medication. The situation is sending me into spirals of anxiety so any ideas about what could be the cause of this saga would be helpful.
History of the issue:
- short bouts of mild dizziness/vertigo and feeling off balance or like the world was spinning slowly started late January lasting minutes to a couple of hours. No headaches.
- After a week of the vertigo feelings, short sharp stabbing headaches began (lasting seconds to minutes) to occur all over the head at random times of day. Painful enough to try rubbing the area and gasping in surprise.
- May 16th: d-day. A “proper” headache concentrated in a palm sized area on top of my head like and then did not go away for several days along with the feelings of being off balance coming on in short episodes.
- May 20th I had an MRI of my head which my GP said was normal (he had been worried about the headache due to clot history/blood thinner medication) and full blood work which found no abnormalities. He told me to monitor it and discuss with my blood clot doctor since I was still in treatment on blood thinners.
- May 21st I go to my blood clot doctor and tell him about the issue and we try a different brand of blood thinner for a week but no change in headache/dizzy feelings so we go back to Eliquis.
- With the headache continuing, I visit a neurologist on February 28th. He suspects a migraine and gives me painkillers and medicine usually prescribed for epilepsy. For the next month the headache on top of my head comes and goes, at times easing off and making me think I am headache free before coming back later in the day. I get the short stabbing pains at other areas of my scalp several times throughout the day. Top, side, left, right. No pattern to where they come or when.
- March 28th go back and report no change to neurologist. He adds low blood pressure medication to the mix. No change to headaches, but dizziness eased off as a symptom. Just headaches in the same style as before.
- April 28th go back to the neurologist to report back and it is a new one as the original guy had left the practice. The new neurologist is skeptical that it is a migraine after I described the above, but has not any other theories. He took me off the medicine for epilepsy and prescribes klonopin (usually anti anxiety?) once a day at night and to continue blood the blood pressure medication. He did not ask me to keep a diary or any questions really, just trying a new combination of medicines. I have been taking my own diary notes but he didn’t look at them, really.
- May 9th my blood clot doctor says my clot has cleared and I am taken off Eliquis. Hurray for that issue being cleared up. But...
- May 11th TSH is 11 on a blood test (due to be retested in July) but all other items on blood test are normal. I am in hypothyroid territory and...
- Since being taken off eliquis my headaches are now worse in intensity. The headaches are more painful and pretty much constant with less down time without pain like I had previously. Either at low intensity at the top of the head or the back of the skull at the top of the neck - in different spots throughout the day. Sometimes a tingling feeling or pain at my right temple.
Then every few days I will get a fast onset across my scalp of a sharp painful headache over a wide area that last only a few minutes, mostly concentrated on the right side of the head. The first time it happened with my boyfriend next to me we were worried about whether to go to ER before it cleared after five minutes. It isn’t a thunderclap, more like a tingle across the scalp area that over ten seconds intensifies into sharp pain. I was sitting and rubbing my head to try and ease it. It was gone in under thirty minutes.
These are the worst as it is quite scary to get the pain come on sharply across a large area, then ease off over several minutes. Sometimes it feels like it is the scalp that is in pain. The headches are “shallow” not deep, so to speak.
If I rate the normal constant headaches on a pain scale, before being taken off the blood thinner they would range between 1 and 5 out of ten (ten being most painful headache in my life), hardly worth taking pain killers. Just uncomfortable. But over past couple of weeks after coming off the thinners they are at six or seven and I taking the painkillers from the neurologist which do not eased the headaches much. At all even.
I have another appointment with the neurologist June 1st but I am frightened and anxious and in pain. And now I may have proper hypothyroidism...this year sucks.
Please can someone suggest any possibilty what these headaches could be?
Or any other symptoms I should look out for that may be a clue?
I am so stressed by this pain continuing even though. It has lead me to write posts like this on the internet to try and find help from others with similar experiences. My boyfriend has decided that it is psychological and thinks I should be getting CBT to calm down worrying about thee headaches when all the tests are showing normal results even though he is worried by the sudden pain attacks.
Here is a collection other things “symptoms” if they are of any help:
I sometimes get pain in my sinuses behind my nose in the morning on my walk to work. Sometimes get a runny nose despite not having a cold. Constipation. Underarm muscle aches for two months. Tired despite feeling like I am sleeping deeply. Tingly feeling at right temple or scalp sometimes.