SuzieK
I had auras which warned me of migraine pain from HS until after a stroke. For 10 years, I was lucky enough to have neither auras or migraines but the auras returned and now I have them several times a month, no pain, just the 20 minutes of flashing colored lights. My neurologist tried several medicines and Topamax helped the most. I still take 100 mgs each night. My question: Is there anything new to prevent auras? Does anyone really understand what causes them? I have never gotten an answer to that question. I am 79 years old and still dealing with migraines.
Benjamin24Member
I'm sorry to hear about your ongoing struggle with migraines and auras. It's frustrating not to have clear answers about their cause.
Have you considered discussing newer treatments or therapies with your neurologist?
Alene L. Brennan, RYTMember
https://migraine.com/migraine-aura
https://migraine.com/stories/aura
https://migraine.com/video/video-of-aura
I hope these help and please keep us posted on how you're doing, if you feel comfortable doing so.
Best
Alene (team member)
Nancy Harris BonkMember
I hear how frustrated you with this uptick in aura frequency, I would be too. I can tell you it's not uncommon for our migraine symptoms and/or patterns to change over time. The thing is when this happens it's always a good idea to let the doctor know so they can make sure everything checks out OK.
The medications we have available to treat migraine work to prevent (prevention medications) and/or stop (acute) the migraine process. We don't yet have medications that work to specifically work only on migraine visual aura. Has anything changed recently that could be attributed to this uptick in aura? So many things can contribute to an increase in attack frequency such as an irregular sleeping schedule, skipping meals, dehydration, changes in the barometric pressure and so many more. The frustrating thing is migraine attacks can occur for no apparent reason - I think this is the nature of the disease.
We don't know exactly what causes migraine, however we do know it's a complex neurological disease falling on a spectrum from mild to severely debilitating. The four phases of a migraine attack include prodrome, aura, headache and postdrome. The thing is not everyone will experience all phases with every attack.
I wish I had a better answer for you but can suggest it may be time to reach out to a doctor who is a true expert in treating migraine/headache. General neurologists may be fine doctors but have a hard time being experts in one area because they treat so many conditions such as stroke, epilepsy, multiple sclerosis, Parkinson's and more. Many general neurologists who treat people with migraine and headache disease claim to be experts but that may not be 100% accurate. A true migraine/headache disease expert is board certified in headache medicine (not all neurologists have this additional certification) and treats migraine and headache all day, every day. Here is more information on why these doctors are beneficial and where to find them;
1) https://migraine.com/blog/really-find-headache-specialist/
2) https://migraine.com/living-migraine/change-thoughts-new-care/
3) https://headaches.org/resources/healthcare-provider-finder/
4) https://migraine.com/living-migraine/how-to-find-a-neurologist-or-headache-specialist
5) https://migraine.com/living-migraine/hiring-right-doctor
Please let me know what you think and I'm hoping today is a good one, Nancy Harris Bonk, Patient Leader/Moderator (Team member)
SuzieKMember
Thank you, Nancy. I will look into finding a specialist. My neurologist gave me all the necessary tests you mentioned, actually twice, as I worked with him for several years when the auras returned. He released me last year to my PT so now finding another doctor is a good idea.
Nancy Harris BonkMember
I agree! The timing seems perfect. Please keep me posted! Nancy Harris Bonk, Patient Leader/Moderator (team member)
