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Migraine Basics: Diagnosis Stories

We want to get to know you! Our Migraine Basics forum series features different questions for our community to learn more about each other's lives and journeys with migraine.

[Reminder: please do NOT include any personal information, such as your phone number, email address, or physical address. We want to protect your privacy!]

When were you first diagnosed with migraine? How did you feel?

  1. I was officially diagnosed with chronic migraine in 1997 after I fell in 1996 sustaining a TBI. Life hasn't been the same.
    I'm exhausted today. I returned from an exhilarating Headache on the Hill 2024 yesterday! It's worth the extra pain and exhaustion!
    How is everyone?
    Nancy Harris Bonk, Patient Leader/Moderator Team Member

    1. hello Nancy. It sounds like you've been on quite a journey since your diagnosis of chronic migraine in 1997, especially after sustaining a traumatic brain injury in 1996. Migraine and its effects can indeed significantly impact one's life and well-being.

      I'm glad you had the opportunity to participate in Headache on the Hill 2024, despite the challenges it may have posed. Your dedication to advocacy and raising awareness about migraine disorders is meritorious. Thank you for advocating for the Migraine Community on the "Hill". Understandably, such events can be physically and mentally exhausting, but the impact they have on raising awareness and support for migraine sufferers makes it all worthwhile. Hoping you get to rest and renew your energy. It can be quite exhausting. Warmly - Rebecca (team member)

    2. Thank you!!! Hope today is pain free! Nancy Harris Bonk, Patient Leader/Moderator Team Member

  2. I was officially diagnosed with migraines at age 12 and am now 48. They became chronic about 20 years ago.

    1. Hi ,
      Thank you for being part of our community. I'm so sorry you live with chronic migraine. We understand how difficult it is to live with migraine disease. Have you found anything that provides relief?
      We're here for you and I'm sending you pain free wishes, Nancy Harris Bonk, Patient Leader/Moderator Team Member

  3. I was diagnosed in 2007, at age 21. My migraines were mainly tied to my menstrual cycle then, with up to 10 days of PMS & menstrual migraines and another 2-3 days around ovulation. Cue hormonal birth control. Unfortunately my migraines became chronic in 2014, and it's been a long, frustrating journey. My frequency is decreasing again, though, since I changed preventatives.

    1. Hi
      Thank you for sharing your story and sharing your experience with us. I understand how debilitating living with migraine disease can be. I want you to know you're not alone - we're here for you!
      Frova is a long acting triptan that can be used to treat menstrually related migraine attacks. It's take a few days before and after your cycle and we've heard from women who find this medication beneficial. Let me share that information with you here;
      I'm sure others will be along soon to share their experiences with you. In the meantime I'm sending you pain free wishes, Nancy Harris Bonk, Patient Leader/Moderator Team Member

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