Migraine Basics: Diagnosis Stories

Congratulations to your husband on his retirement!! Let the next chapter begin.
I loved being told I had a "mild" TBI and in two weeks I'd feel all better. Nothing could have been further from the truth. My TBI changed the entire trajectory of my life. I believe my autoimmune issues were triggered by it 🙁.
I'm sorry you are seeing an uptick in attack frequency. I understand how annoying this is. Has the doctor suggested anything that may be beneficial to bring that number back down?
Low pain wishes on they way to you, Nancy Harris Bonk, team member

Any TBI can affect someone, no matter how mild. For instance, one person's pain might be less than mine, but to the other person, that pain is unbearable. It makes no difference who is sicker. To each of them their pain is awful and to that point, we need to support them. End of debate.

We know of military officer administrators who were not actively fighting with guns, tanks, etc., but rather running the administrative part of the military deployment. They didn't go out and actively fight, but rather they were in the "office" doing their duties there. Then the ammunition storage was hit, causing a series of explosions, rocking their world. The concussion of the force of the explosion caused the brain injury even though nothing touch them physically. They didn't even fall over. Symptoms were memory loss, fatigue, difficulty concentrating, headaches, constant tinnitus, dizziness, nausea, and in the middle of talking they'd just lose their train of thought, and the comment they were making, gone. I saw this personally. It was real. Thoughts just completely gone, but they were told there was nothing wrong with them. It wasn't until they were discharged that their TBI was properly diagnosed.

I think all of us suffering through migraine and all of the symptoms that accompany migraines. I don't think it's mild. Do you?

I guess they are basing that comment about "mild" on how well you are managing in spite of a brain injury. Even my injury is mild by the standards of care; that I can care for myself, cleaning my body, feeding myself, dressing unassisted, etc. But like my hubby just said, "Losing your job, living in pain 24/7 with nausea, vertigo, cognitive issues, and AIWS, it may like mild to them, but it's not mild to you because changed your life goals." I agree!

Nancy, Any TBI can affect someone in many ways, no matter how mild. For instance, one person's pain might be less than mine, but to the other person, that pain is unbearable. It makes no difference who is sicker. To each of them their pain is awful and to that point, we need to support them. End of debate.

We know of military officer administrators who were not actively fighting with guns, tanks, etc., but rather running the administrative part of the military deployment. They didn't go out and actively fight, but rather they were in the "office" doing their duties there. Then the ammunition storage was hit, causing a series of explosions, rocking their world. The concussion of the force of the explosion caused the brain injury even though nothing touch them physically. They didn't even fall over. Symptoms were memory loss, fatigue, difficulty concentrating, headaches, constant tinnitus, dizziness, and nausea. Plus, in the middle of talking to you, they'd just lose their train of thought, and the comment they were making, completely gone. I saw this personally. It was real. Thoughts just disappeared, but they were told there was nothing wrong with them. It wasn't until they were discharged that their TBI was properly diagnosed.

I think all of us suffering through migraine and all of the symptoms that accompany migraines. I don't think it's mild. Do you?

I guess they are basing that comment about "mild" on how well you are managing in spite of a brain injury. Even my injury is mild by the standards of care; that I can care for myself, cleaning my body, feeding myself, dressing unassisted, etc. But like my hubby just said, "Losing your job, living in pain 24/7 with nausea, vertigo, cognitive issues, and AIWS, it may like mild to them, but it's not mild to you because changed your life." I agree!

Exactly - there is nothing mild about a concussion and we're both proof of that!
I've been in the middle of a sentence and like the military administrators completely lose my thoughts. The change in my executive function has been one of the more difficult symptoms I deal with.
Thank you for sharing this, it's so good to know I'm not alone! Nancy Harris Bonk, team member