jangordon
I am considering a nerve block but i just cant make up my mind. I have tried botox 2 seperate times and wonder if maybe I should try it again . I just dont know what to do ,, I have had migraines since I was 3 years old and I and now 63 . Been on everything , had everything done atleast once. Any words out there ?
Nancy Harris Bonk Moderator
Hi
Thank you for reaching out and sharing your journey with us. I understand how frustrating it is to live with migraine disease.
Botox can be a wonderful management tool - I've been getting it since 2016. For some of us (myself included) it can take three, four, maybe more rounds of Botox before we see an improvement in migraine frequency and severity. While not a cure, Botox can go a long way in helping manage migraine disease. Having a skilled doctor give us the injections is important. There is a specific Botox protocol for migraine, many doctors may claim they are experts at administering it but truly are not. It's frustrating because we want it to work immediately, we just want the pain to stop.
Nerve blocks are a great option for temporary pain relief. Some people get a few weeks, others a few months. It may be an option to get you over the hump while waiting for another round of Botox.
Here's the thing - even though it may feel like we've tried everything under the sun to manage migraine, that may not be the case. There are over 100 medications, supplements, devices, complementary therapies and lifestyle modifications that can be used to manage migraine disease and most of us are on a combination of these, I am. The other thing that can have a huge impact in our care is seeing a doctor who is a true expert in treating migraine and headache disease, let me explain. These doctors are different from general neurologists as they are certified in headache medicine, all neurologists are not. General neurologists may be fine doctors but have a hard time being experts in one area because they treat many conditions such as stroke, epilepsy, multiple sclerosis, Parkinson's and more. A true migraine/headache disease doctor treats migraine and headache all day, every day. Here is more information on how these doctors are different and how to find one;
https://migraine.com/blog/really-find-headache-specialist/
https://migraine.com/living-migraine/neurologist-vs-specialist
https://migraine.com/living-migraine/change-thoughts-new-care
I've given you a lot to go over so I'll stop for now! Will you let me know what you think? You're not alone - we're here for you! Wishing you a low pain day, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team
jangordon Member
Nancy Harris Bonk Moderator
Ok! Let me know what the doctor says! Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team
Peggy Artman Moderator
@jagordon,
Thanks for sharing. We are glad you are here. Nancy gave you some excellent information. Personally, I have never had nerve blocks, so I can't share any words of wisdom on that. I do get Botox injections, and they have been very helpful in managing my migraine symptoms. In my experience, I had to go through about 3-4 rounds of injections before I noticed any real relief. It may be worth giving it some time with Botox. You can talk to your doctor and see what he/she says about nerve blocks vs. Botox. Hopefully, more people will chime in on their experience with nerve blocks.
Warmly,
Peggy (Migraine.com team)
Kimberly.broughal Moderator
Best,
-Kim (Migraine.com Team Member)
CommunityMember6214726 Member
I too have been having Botox treatme nts, and was about to give up until the last month (after my 3rd month following my 3rd treatment) when the number of migraines dropped by 50%...from 15 to 16 per month to 8.
It is so great to have fewer migraines!
Rebecca C Moderator
Melissa Arnold Community Admin