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persistent postdrome (2,5 weeks now)

hey everyone,

i wonder if anyone can relate and has any advice. I've had aura migraines since 13 (i am 36 now) and am lucky to only suffer from them every few months. Beginning of september i had a to me normal attack with the day after the postdrome lasting for one day, which is also normal to me. 5 days later i had another attack and this time it was a very strange one. I had 4 auras in a row before the headache started. The headache was more severe and i felt way more sick. The postdrome stayed for almost two weeks, and then i had another attack in my sleep and two days later another one of that strange migraine with 4 or 5 auras in a row (the aura phase lasted 2 hours...) before the headache started. This is almost 3 weeks ago and i am still stuck in the postdrome phase. I have a constant dull headache, a lot of pain in my neck, shoulders and ear, very tired eyes with bad photophobia, increased vision snow and tinnitus. I am very fatigued and sometimes lightheaded. I have never had this last so long. I can't watch tv, reading is hard, as it takes more effort to focus, i hardly go outside, because the light is too bright and i quickly suffer from sensory overload.

I suffer from anxiety and i don't know if that makes it worse or vice versa. Should i worry? My doctor said give it time as it is probably stress. But i have never had this before. I am so afraid this will never go away. It interferes with my everyday functioning so much.

  1. Hi @rogue84,

    I'm sorry to hear you are having extended symptoms. I would however encourage you to speak with your doctor again stressing how much this is impacting your quality of life. Seeing as it's been two weeks and still lingering, I would like to see the doctor do a bit more investigating.

    I understand anxiety (I have it too) and that can certainly contribute to us not feeling well. However, not every condition is caused by stress and/or anxiety and to attribute it to that sounds like an easy answer. It may be stress, but I would continue to investigate. If your doctor doesn't seem to be listening to you, it may be time for a new one!

    Will you keep me posted?
    Nancy Harris Bonk, Patient Advocate/Moderator

    1. I have the same symptoms and premature menopause made everything worser.

      1. Hi @dmn228,

        I hear you, that's very frustrating. Many women have good results with Frova, a long acting triptan, taken just before menses and a few days during. Here is information on this; https://migraine.com/blog/short-term-option-for-migraine-prevention-frova/.

        Also, let me share our information on menopause and migraine with you here; https://migraine.com/living-with-migraine/hormonal-migraine-the-basics/.

        Maybe something to discuss with the doctor?

        Wishing you a low pain day,
        Nancy Harris Bonk, Patient Advocate/Moderator

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