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Please help with persistent migraine

I have Hx migraine, hormone related. Son Dx at age 13. Now 14. Migraine with aura on Jan 23. Still going on. 4 ED visits, 2 hospital stays. . Occipital nerve block x2. SPG block x2. Been 3 1/2 months with head pain. Now Dx with New Daily Persistent Headaches. But not new??? Can anyone give some insight? Luck with repeated SPG blocks? Pain wise in AM on awakening and especially with standing. Please help...

  1. Hi BrendaRNMom,

    Thank you for your question. I wish I had an answer for you, but only a doctor can diagnose us properly. You may want to consider see a "true" migraine/headache expert , one who is board certified in headache medicine which is different than being certified in neurology. Let me share these articles on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/
    and https://migraine.com/blog/really-find-headache-specialist/.

    Let us know how you make out,
    Nancy

    1. Check out this article from a Harvard professor on urgent vs non-urgent headaches. It also has a pretty cool quiz you can take when you have a headache.

      1. I have had migraines since I was little. They because much worse after a car accident about 14 years ago. I have tried all kinds of doctors, treatments, and medications. I recently started to get STG blocks. They seemed to help at first but the last two times the side effects have been miserable. My sinuses ache and my nose plugs up and draines a lot. I have also gotten extremely dizzy after a few days. I don't think I will try the blocks again. Could I be allergic to the medication in the injection? I wish all with migraines a miracle treatment that will cure all. Thanks.

        1. Hi ea333525,

          Thank you for your question. I think we all wish there was a quick fix or a "miracle treatment" for migraine disease. Hopefully we'll see a cure in our lifetime.

          Sinus pain, nasal congestion and drainage are often migraine attack symptoms. In fact most people who think they have a sinus infection are really having a migraine attack. You can read more about that here; https://migraine.com/blog/sinus-headache-or-migraine/.

          Now on to SPG blocks used for pain relief. An allergy is possible, but I wonder if it's more migraine symptoms. I have a few articles about these you can read here; https://migraine.com/?s=SPG+nerve+block&submit=Go.

          I understand how frustrating migraine disease is. I'm currently seeing my 5th true migraine expert and finally getting somewhere. If you haven't seen "true" migraine/headache expert, I would encourage you to seek one out. The thing is neurologists may be fine doctors, but have a hard time being experts in one area because they treat so many different conditions such as epilepsy, stroke, multiple sclerosis, Parkinson's and others. Migraine/headache are board certified in headache medicine, which is different than being certified in neurology. When you get a chance, take a look at this information on how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and https://migraine.com/blog/really-find-headache-specialist/.

          I hope this helps, keep me posted!
          Nancy

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