I've had chronic daily headache/migraine for 10 years now, and migraine since I was a small child.
I am frustrated because I can't seem to find a specialist who can see me more than twice a year, at most. I would like to try more medications, but I would like to know there is someone I can talk to about side effects, etc. and feel supported but since I can't get in to see my Dr. more than once every eight months this is difficult. I try something for three months, it doesn't work or the medication is intolerable and then I wait for the next appointment. I usually suggest the next medication to try because I've researched quite a bit (hooray for pub med), which is also frustrating because I don't feel like I'm doing anything with this doctor except getting pills, there is no overall treatment plan. My GP has said he doesn't feel that he can treat my migraine condition. I have looked and I can't find any other specialist that is in my insurance network (which is small) or who is a good Dr. (I've had a couple of bad ones, including one who "fired" me as "untreatable"). I don't know if I can afford out of network care, but I'm starting to think about paying out of pocket because I feel desperate.
I just had an appointment with the neurologist's assistant cancelled, and the next appointment available is in March. I actually started crying on the phone with the appointment schedule person because I was so frustrated.
Is it unreasonable to expect to be able to see a specialist more than once ever eight months? (Maybe it is, I don't know at this point) Does anyone have suggestions for finding a new specialist?
Thanks. I'm really at the end of my rope and its nice to have somewhere to case a message in a bottle, so to speak.