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SCARED. SAD & LOST

Hey all.. this is the first time i have ever joined a community for anything.. i am a 25 year old male who for the last 4 1/2 months has had mind bending. soul stripping migraines or tension headaches every single day. these pains have only subsided for about a week in these months and is now back tenfold stabbing the sides of my head and neck. on an 8 day bender right now with no relief in sight… i have never had headaches before. i am honestly terrified and my anxiety is at an all time high as i have not slept. worked. or done anything close to normal. the pain is just constant and constant. no one i know seems to understand where i’m coming from i was prescribed UBRELVY 100mg’s and it did not work. now i was prescribed a medrol pack and Amitriptyline 10mg’s that i will start tomorrow. have these medications worked for anyone? I just want one single day of relief..

  1. Hi ,

    I posted this on another thread, but am reposting to make sure you see it!!

    Thank you for reaching out and sharing your story with us. I am sorry to hear things have been so difficult and wanted to let you know you’re not alone!! It’s very difficult to do much of anything when our head hurts!

    Good to hear you’ve been in contact with your doctor. My doctor also prescribed Ubrelvy. I took it once and didn’t have much luck, but the second time seemed to be the charm, so to speak. I would encourage you to see what the doctor says about trying it again. Try not to get discouraged, there are many other options for acute treatment of migraine attacks.

    A medrol dose pack can be used to break a migraine cycle, and may take a few days to kick in. Try not to get discouraged, as frustrating as that may be.

    As few things to keep in mind when starting new medications, it can take up to 90 days, at the therapeutic dose, before we see improvement, again frustrating!! As our body adjusts to the new medication, potential side effects may lessen as well, and not everyone will experience side effects. Many years ago I took amitriptyline, with varied success. Some people do very well on it!

    While waiting for these meds to kick in, there are a few things you can do, which will help with feeling hopeless. People with migraine disease have overly sensitive brains and thrive on routine. There is a phase doctors use to help us manage migraine disease called SEEDS. S=sleep – keeping a good sleep schedule; E=exercise – on a regular basis, E=eating – on a regular basis, D=drink, stay hydrated; S= manage stress. I find this helpful and makes me feel like I have some ability to manage this disease. I hope that makes sense!

    I understand we want the pain to go away – it interferes with everything. Something I wanted to mention that can be very problematic for some of us is taking pain relievers and/or migraine medications, whether prescribed or over-the-counter, more than two to three days a week. Doing so can increase our risk of rebound headache and will leave us in a daily cycle of pain and our migraine attacks may be more difficult to treat. Rebound can be caused by OTC pain relievers and even caffeine (a stimulant) for those of us who are susceptible, myself included. I’m able to have one cup of coffee a day without any issue. Frequent use of these types of medications can also increase our risk of migraine becoming chronic, and no one wants that!

    I’ve given you a lot of information, so I’ll stop now. Please let me know what you think!!
    Nancy Harris Bonk, Patient Advocate/Moderator

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