caret icon Back to all discussions

Symptom that is concerning and new

I’ve been struggling with migraines for quite some time, and my migraines can mimic strokes, but recently I have been getting involuntary movements of my head and body the last few days I have meds to help stop migraines but they are not seeming to help I am concerning going to er tomorrow where I live I am effected by pressure changes and the weather has been very up and down I also have speech problems when I get my migraine no head aches just other symptoms that would effect my body

  1. Hi there - thanks so much for sharing some of what you are dealing with right now. Are you followed by a migraine specialist or neurologist whom you could call regarding these newer symptoms that you are experiencing? Barometric pressure and weather changes are common migraine triggers and challenges with speaking (aphasia) is a common symptom of migraine. As migraine is a complex neurological disease it is possible to experience the neurological symptoms without the head pain, as you describe. We always encourage folks who are experiencing new symptoms (such as the involuntary movements you mentioned) to seek evaluation from their doctors. The ER is always an option but they aren't always the best equipped to gently respond to migraine - as the environment often includes bright lights and long waits. If you have the option of calling your doctor, that may be a good option. However, if you feel concerned and that you need to be seen right away, please seek medical care wherever you can be seen. We are here for you and sending you compassion and support. Warmly- Holly team.

    1. Unfortunately I haven’t seen a specialist in many years and the body movements are new symptoms I have talked to my doctor and he is reluctant to send me to a specialist and tomorrow will be days 5 the pass 3 days with the involuntary head and body movements and my meds to stop the migraine are not working I took them twice today and the speech issues and the movements are not improving I’m hoping to go in the morning when there is less of a wait I am able to sleep idk how tonight will go we have had thunderstorms almost every night this week plus it’s been very warm in the the day so it’s been very hard and exhausting on me. Hopefully tomorrow they can try and set me up an appointment that is my biggest hope to gain is an appointment with a specialist cause I would like to get checked to make sure it isn’t something else

      1. Sorry to hear that your medicine doesn't seem to be working 🙁. That truly is the worst feeling. Please do keep us in the loop if you decide to go to the ER tomorrow. I think it's completely understandable that you want to get checked out given your new symptoms.

        Also hoping that you can get some much-needed rest this evening, and that the troublesome weather subsides soon 😀. - Cody (Team Member)

    2. Posting a update I have been to the hospital and thankfully they gave me some medicine to relieve me today and referred me to neurologist for my my migraine the last time was in 2016 so I am glad I was able to to get some relief and a referral to neurologist I’m exhausted today but I think I will get the rest I very much need tonight

      1. Thank you for the update. Good to hear you have some medications and a referral. Might be a good idea to check and see if this neurologist truly understands how to treat migraine and headache disease. Let me explain. General neurologists may be fine doctors but have a hard time being experts in one area because they treat many conditions such as stroke, epilepsy, multiple sclerosis, Parkinson's and more. A true migraine/headache disease doctor treats migraine and headache all day, every day and has additional certification in headache medicine not all general neurologists have. Here is more information on how these doctors are different and how to find one;

        Let me know what you think and I'm sending you pain free wishes, Nancy Harris Bonk, Patient Leader/Moderator Team

      2. Hi , how are you feeling? I was curious to know if the medication has helped with your involuntary movements and if you got to see the specialist yet. Truthfully, there is no harm in having a specialist on your team who understands what migraine is like, especially because migraine can change throughout your lifetime. Changes are very common, even if they are uncomfortable. I hope you've been sleeping better and feeling a little less worried this week. We are here to support you! Take care and talk soon. -Melissa, team

    3. I have just experienced an unusual migraine. It started with feeling cold and I actually was a normal normal but my teeth chattered and I bascially slept for most of the day. I used up my meds that day. After the pain stopped I still suffered from the hangover affect.

      1. Sorry to hear that you went through an unusual migraine 🙁. I hear you on how the migraine hangover can take a toll on us. I often feel nauseous after a migraine, and may experience other things like sensitivity to light, and changes in mood. Does anything tend to help when you feel hungover? I do my best to rest, eat ginger foods like ginger tea or ginger candies. Best, - Cody (Team Member)

      2. Hey Ashley -- that sounds really miserable! You may be interested in knowing that lots of people with migraine struggle with temperature changes when they have a migraine -- sometimes hot, sometimes cold. Some people even have half their body feel hot and half of it feel freezing! In any case, it's a good idea to let your doctor know when you have a symptom that's new or different, just so everyone is on the same page.

        Here is a good article about temperature changes that is very popular:

        I hope this doesn't become a regular thing for you! -Melissa, team

    Please read our rules before posting.