I was finally diagnosed with intractable variant migraines last year. However it’s almost 3 years since this incredible migraine started. I’ve done IV treatment, blood pressure meds, anti seizure meds and so many more. It goes in waves. Some days it’s just painful like a 5 or 6. Other days it’s so intense that the feeling of my hair hurts,I can start to lose my vision, have vertigo attacks, nausea, nose bleeds ect. At that point it’s a 9.8. I try not to say a 10. Because I have hit that before and thought I was ligit dying.
No one I talk to understands or can wrap their head around the idea of this. In all I’m just looking for someone to say I’m not alone in this. It is tearing me down. Thank you