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Treatment resistant migraine? :(

Has anyone had a really treatment resistant migraine, and had luck after seeing a neurologist? I feel so hopeless right now, it's hard to imagine this ever getting better. I know everyone is different, but speaking to my doctor makes me feel like a lost cause so I could use some hope 🙁

  1. thank you for taking the time to share this, so we can offer any support or encouragement that we may have for you. I'm really sorry to hear that you're not getting relief from your current migraine treatment.

    I don't know your history with migraine and neurologists, but it might be worth speaking with a headache specialist. Here's a great article about them.

    And here's a video you might find helpful.

    They might be able to better evaluate your migraine attacks along with any treatments that you have tried thus far, and hopefully offer so more effective options for you.

    In the meantime, is there anything that helps to bring you comfort during an attack? For example, I find ice packs to be really helpful to just cut the edge of the pain. I especially love the headache hat that I recently got on amazon.

    Others have found something like a wearable device such as Nerivio to be helpful.

    I'm sure others will join the discussion and share their experience as well. In the meantime, I hope that you find comfort in being part of a community of people who get it. Wishing you some relief and comfort soon!
    Alene, moderator

    1. 'm so glad you shared what you are up against with the stubborn (and perhaps intractable?) migraine attacks you are experiencing. I agree with Alene in encouraging you to seek a different migraine specialist if you are feeling like a lost cause when you speak to your current practitioner. A major part of the migraine journey can be finding a good fit with a doctor with whom you feel a true partnership. I have been exactly where you describe with a doctor telling me there was nothing left to try and he told me he could therefore no longer help me. I felt devastated and abandoned. The next migraine specialist I found has ended up being a wonderful fit- one in which I feel heard and valued- and over the last decade he has helped me continually try new treatments without judgment when they don't work.
      You are not alone in this. We are here with you and for you. Please let us know if you feel a change in doctor could be of help to you. Warmly - Holly - team

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