Unable to find treatment for menstraul migraines...defeated.

Hi Jessica,

There are a few things to talk about here...

Your doctor: Neurologists are not the best doctors to see if you're having trouble with your Migraines. A Migraine and Headache specialist IS. Here are some informative links for you about finding the right doctor for your situation:

How Are Migraine Specialists Different? https://migraine.com/blog/how-are-migraine-specialists-different/

Looking For A Migraine Specialist? https://migraine.com/blog/looking-for-a-migraine-specialist/

Menstrual Migraines can be difficult to treat, but there are some good options. One of them is Frova. Frova is a triptan that is sometimes taken as a preventive.

Short-Term Option for Migraine Prevention: Frova https://migraine.com/blog/short-term-option-for-migraine-prevention-frova/

Serotonin Syndrome is one of those things that is super important for patients to be aware of and talk to their doctors about, but it is very rare. It isn't a reason to get scared and toss out the baby with the bath water if your doctor thinks it is reasonable to try medicine combinations. It is often medicine combinations that make the biggest difference for patients. The trick is in having that really good conversation with your doctor so you understand what's useful to worry about, and what is worth the risk. All meds have side effects, and all can result in death if not taken appropriately. The key is starting low and going slow and being an educated patient.

Migraine Medications – Contraindications vs Warnings https://migraine.com/blog/migraine-medications-contraindications-vs-warnings/

I hope some of this is helpful for you. Let us know what you decide and how you are doing 😀

~Ellen

Hi, I haven't been on this forum for a while. I suffer chronic daily migraines. My menstural migraines flatten me for 3 weeks or more. I am on the pill (Levlin) to make sure my migraines only happen every 3 months. I am terrified of the pain of these migraines. I have a little boy I have to look after & run around & its so so hard. Off the pill my hormonal migraines are just as bad.

I suffer terribly every single day and night as it is with severe migraines & to go through these as well is horrible. My twin sister had a partial historectomy (cant spell) years ago for her hormonal migraines & she hasn't suffered those since. As far as I am aware they don't really do that any more or else I would be there like a shot.

I don't really know what to say to you as far as pain relief. Our meds here in Australia are so much different to what you guys have. You seem to have alot more at your disposal plus you have headache/migraine clinics which we don't.

Personally I have tried everything to help, Botox which was done through of all people a beautician, I don't think she did enough on me though, preventatives, steroid shots in back of head, norspan patches, Lyrica, MRI clear, 2 Neurologists, 2 Physios, 5 Ostepaths, 2 accupuncturists, been in & out of hospital so many times with no pain relief. Most recently 2 weeks ago by ambulance. All they could tell me at the end of that day is we cant help you. My migraine pain levels didn't even go down.

I just want to really say I guess you are not alone with these type of migraines. Understanding & support from other people in your situation is critical I feel when trying to deal with these.

garfieldrules, they still do the hysterectomy. I had a full hysterectomy (@40 with no kids) in 2009. I was the first person Southern Health approved one for. It helped with the menstrual migraines but I still get migraines. The Botox has helped the most of anything.

You need a neurgologist to do the Botox - most people that get it for beauty purposes get it in their face and get like 5 units. Neurologists do it in your face, your head, your neck and get over 20 units.