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Working while on SSDI

Does anyone on disability work part time? I am on SSDI, but would love to try to work (very) part time. What are your experiences especially when navigating being on SSDI?

  1. Hi
    Great topic! Thank you for starting it. Yes, I am on SSDI and work part time remotely. There are certain income limits to be aware of which you can find here;
    I hope this helps and look forward to hearing from others on this topic. Let me know what you think! Nancy Harris Bonk, Patient Leader/Moderator Team Member

    1. , do you mind if I ask you a few more questions? Did you do the trial return to work? The link you provided- is that amount you need to stay under per month before they start deducting from your SSDI payment? Or do they deduct regardless?

      1. Sure! No, I've not done the return to work, as I'm still too disabled to attempt full time employment.
        Yes, I believe that is the amount you need to stay under so as not to jeopardize your SSDI. I don't believe they do anything until you go over that amount, however I'm not an expert in this area.
        Ask away! Nancy Harris Bonk, Patient Leader/Moderator Team Member

    2. Cheryl Picerno
      Is the return to work program for people wanting to return full time?
      Were you required to notify Social Security that you were working part time? I’m fairly young and had a very difficult time getting disability and I’m always afraid they’ll take it away. You know having migraines is very isolating, but having them and also not working is even more isolating. I’m not in a position to gainfully work, but I’m hoping to find something to do to keep my mental health in check.

      1. I hear you! Losing SSDI is often on our minds, especially when we are younger. I haven't notified SSA that I'm working PT and think as long as I stay below the income limits I won't trigger anything.
        SSDI may not be enough to live and many have to work PT, who are able. I believe, but my be entirely wrong, the return to work program is mainly for those who want to attempt to work FT without putting their SSDI in jeopardy. Here's the website and more info from SSA:

        "Social Security's Ticket to Work (Ticket) Program supports career development for people ages 18 through 64 who receive Social Security disability benefits and want to work. The Ticket Program is free and voluntary. It helps people with disabilities move toward financial independence and connects them with the services and support they need to succeed in the workforce.
        The Ticket Program is a good fit for people who currently receive Social Security disability benefits, but who want to improve their earning potential and are committed to preparing for long-term success in the workplace. It offers qualified people with disabilities access to meaningful employment with the assistance of authorized employment service providers."
        Does that help any? Please let me know and continue to ask away!! Nancy Harris Bonk, Patient Leader/Moderator Team Member

    3. , do you find working for the site a good option for you? Years ago Joanna Bodner (sp?) asked me if I was interested in joining the team, but I was so afraid I would lose my benefits. To anyone else reading, what types of jobs are you able to do successfully while navigating migraines?

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