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One of the worst hidden disabilties ...

Hi all.
New here ... I've suffered from an 'everything-stopping' vicious form of Classical Migraine with Aura/Vomitting/Severe Pain since my first attack at the tender age of just 14 years. I'm 53 now, so that's a lot of years of dealing with this debilitating condition. Its a disability that has cost me dearly throughout my life thus far - from employments lost, progression opportunities denied through to social activities and family gatherings forgone repeatedly.
No doubt, it's a story that many of you are familair with and can relate to ... But, to this day, the one thing that both saddens and erks me in equal measure is the outright ignorance towards the condition ! I've long lost count of the number of times that I've hard people talking about it just being a 'bad headache' and something you can 'get over' in a couple of hours after popping a few pills ... but, of course, we all know that for the vast majority of us, nothing can be further from the truth.
In the early days, I often went out of my way to try and educate people around me about the condition, even finding myself pleading for understanding and support ( nearly always in vain ) from past employers as they brought the hatchet down on my career within their organisation as a consequence of migraine. As time went on, I realised that much of this effort was futile, because the only time anyone truly understood the impact of it was if they actually witnessed me crawling around the floor of a darkened room, throwing my guts up and praying for a swift exit from life as I knew it in that very moment ! Most would never get to see that stage of the migraine, of course, so remained blissfully ignorant ( and, therefore, intolerant ) towards those that unavoidably were absent from work/social functions, often at the 11th hour and 59th minute - a migraine does so love a sneaky, surprise attack afterall, doesn't it !
I had hoped that my migraines would lessen with age, but sadly it hasn't really panned out that way for me ... I had a few fleeting moments of optimism in my 20s and 30s as I managed a few years in both of those decades where I was migraine free, but as soon as I hit my 40s they were back with a vengance and have remained ever since. Of course, like many of you, I live in hope that one day I'll see an end to these life-altering, dreadful afflictions - a breadkthrough in understanding of the actual mechanism of migraine and a final cure/treatment thereafter perhaps ... Yet, what I hope for almost as much in the meantime is just a bit of patience, consideration and an improved ability/willingness of non-sufferers to refrain from impulsive judgement bourne out of ignorance ... That in itself would be a tremendous help to those of us that already feel the deepest sense of frustration and sadness of how our conditions impact on everything around us.

  1. welcome to the migraine.com community! We are glad you've found us! Thank you for sharing your journey and experience with us. I'm sorry you have been suffering from migraine disease for so long. I understand how tough that can be as both I and my husband are long-time sufferers. I hope you enjoy the community and its resources. Feel free to interact and join in on our discussions as much as you would like. There is so much to take in here from a community of people who understand what it is like to live with this tricky disease. Warmly, Cheryl migraine.com team


    1. Welcome!! As there is lots of great information here on our site. When you get some free time, make yourself comfortable and take a look around!
      I couldn't agree more - you've summed up my feelings perfectly! Migraine is so misunderstood. Hopefully with continued research and education, we'll move the needle toward enlightenment!
      We're here for you and looking forward to hearing more of you journey. Hoping today is a low pain day, Nancy Harris Bonk, Patient Leader/Moderator Migraine.com Team

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