lsh5id
"I started aimovig for 9 months in December 2018 . I developed psoriasis on my back hips and legs complete exhaustion and hair loss and nausea.In December 2019 i took ajovy for 3 months Within a week I developed terrible joint pain in my hands and feet.I also had constant nausea and exhaustion and my migraines got much worse.I also gained 16 lbs which i cannot lose. I went back to my headache doctor and he said no more cgrp for me. He said he can do no more for me at present and said I would have to go back again to Kings College in London and see Peter Goadsby again I live in Ireland and we are not able to travel due to covid19.My Knee surgeon referred me to a rheumatoligist.He put me on steroids and did a lot of blood tests. He does not if I have arthrititis from the psoriasis, rheumatoid arthritis or if it is an reaction to cgrp.The pain is gone since I took the steroids and i go back to the doctor in 2 weeks. He said it will be very difficult to know what is actually wrong with me. cgrp has made my migraines so much worse.As I live in Ireland we will have a long wait for the gepants and ditans to come here.I have a migraine with pain in my ear for 9 days now and I taken zomig naproxen and still cannot break the pain cycle.I am really desperate now .My mother died suddenly in January 2018 and my migraines just went through the roof. I have had 3 episodes of vertigo each time i was affected differently and had to go for physio.I am 66 now and have migraines since i was 12.I was only diagnosed 8 years ago when I saw my headache doctor.I pray that I wil get some relief from the chronic pain that I have everyday .I have tried everything ,but nothing helped. If anyone could give me some hope I would be very thankful I live with my brother,he is so good to me I do not know how i would cope without him Joan"
Oh my goodness, Joan, what a lot you have endured with migraine, particularly in the last two years. I hear how miserable you are feeling between the current migraine symptoms, joint pain, and side effects from CGRPs. Accessing treatments and appointments is certainly complicated right now with the COVID pandemic. Living in an island country like Ireland is positive for slowing the virus in your country, but difficult when you need to travel outside the country for treatment.
You are not alone experiencing joint pain as a CGRP side effect. It is frustrating being unable to determine if that is indeed a lingering side effect or if a rheumatic illness happened to coincide with the CGRP. Taking a wait and see approach is never fun. If you are ultimately diagnosed with RA or PsA, we have sister-sites dedicated to those illnesses you might want to visit.
https://rheumatoidarthritis.net/
https://psoriatic-arthritis.com/
It can be hard to hold on to hope when living with migraine and everything feels bleak. I thought these articles might offer you some encouragement:
https://migraine.com/blog/holding-on-to-hope/
https://migraine.com/blog/finding-hope-in-migraine-research/
Know we are here to listen and provide support anytime you feel discouraged and overwhelmed. Wishing you a gentle day. ~Allyson (Migraine.com team)thank you Allyson I will read these articles.