Lesions?

Hello again, I forgot to add, how many migraine sufferers have lesions on their brain? My last scan I had over a dozen.


Community Answers
  • Rebecca7879
    12 months ago

    I have lesions! We don’t know how long I’ve had them as they were discovered with the MRI post Meningitis which I had in 2009. My latest MRI showed no changes. I’m told not to worry about them.

  • Nancy Harris Bonk moderator
    12 months ago

    Hi NanR,

    It’s not uncommon for people with long term migraine disease to have white matter lesions, I do. When I asked my doctors if I should be concerned, the said no. You may want to nail down the doctor and get a real answer. If she doesn’t give you one, I wonder if its time to seek out a second opinion?

    Nancy

  • NanR author
    12 months ago

    Less than 24 hours on this site and I’ve learned more than the last ten years with my neuro. I’m working on seeing a different one. Thank you for your help! I will continue to search and read through the info here.

  • Joanna Bodner moderator
    12 months ago

    This is SO fantastic to hear how much our site has helped you!!!

    Amazing how the “patient” in many cases ends up educating their own provider! Good luck with finding a new doctor. Here is a resource that may help – https://migraine.com/blog/really-find-headache-specialist/. We love hearing from you & always feel free to reach out and/or comment. Wishing you a good night! -Joanna (Migraine.com Team)

  • Tamara
    12 months ago

    2 lesions here – frontal and on my spinal chord (wondering if that one is from a car accident and severe whiplash a few years ago) ….. wish I could have had one before the accident to compare :/

    Once MS was ruled out here too – both my pain management and neurologist said they were from the migraines likely and can cause memory issues. I’m still getting brain zaps and other symptoms from my time on cymbalta, which was over a year and a half ago.

    I think some of the meds side effects are permanent and don’t go away just because you stop taking it, it sucks,

  • NanR author
    12 months ago

    That would be tragic Tamara.

  • NanR author
    12 months ago

    SPSusan, was the stroke caused by the migraines?

  • NanR author
    12 months ago

    Thank you both for your responses! So, lesions are not uncommon with migraine sufferers, is what I am gathering. So does anyone know if the lesions are causing problems such as memory loss, and mental decline or can this not be differentiated from the migraines?

    I was taking Topamax in 2015 but the side effects were too much for me and I was weaned off. I just feel like the side effects didn’t go away when I discontinued the drug. Like I didn’t wake up from the dream. Finally, in early 2016 I convinced my neuro to do an MRI and that is when the lesions were found. Three months later another MRI showed more lesions. I have not had a third. I have had a lumbar puncture and MS has been ruled out.

    My neuro does not discuss these lesions with me at all. When I bring it up she wiggles her way out. She says my memory and mental problems that I notice can be explained by the migraines, but I will sometimes go a month without a migraine, yet still have the same mental problems.

    It’s very frustrating. I’m trying to get in to see a new neuro, hopefully I can get some better answers.

  • zonie
    12 months ago

    I have over 20 multifocal lesions on the frontal cortex of my brain

  • SPSusan
    12 months ago

    I have many, many lesions. I don’t recall a number but the neurologist was impressed. Then I have the one big one from a stroke.

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