Tell us about your symptoms and treatment experience. Take our survey here.

caret icon Back to all discussions

What do you think is the most misunderstood part of living with migraine disease?

  1. Since I don't suffer from terrible headaches. I'd say people understanding how difficult the other migraine symptoms are to deal with are.

    1. That a migraine isn't just a "normal" headache. I've had people tell me to just take Tylenol and get "over it" I'd like those people to have one, just one of my headaches, with all the nausea, pain and inability to open your eyes because the light hurts.

      1. The extreme traumatizing pain!
        Lights hurt ! its real pain
        Noise (even a little bit) is like stabbing my head
        And above all the aura! No one understands, I have trembling legs, balance issues, trembling hands, n ppl think including my mom that I am just nervous,some say I run from work,or they'll say I am lazy.....
        And now I even have started having vertigo,though it's not severe but it stops activities....

        1. I have Vertigo too. For two weeks now. I’m not getting much relief from the migraine either. Feels like someone stabbing me in the left eye and in my temples and forehead. I’m thinking of trying Aimovig, but not sure yet.

      2. Worst is people just caring about how it inconveniences themselves and not understanding how hard it is to live with and overcome.

        Please read our rules before posting.