Which part of your invisible condition of migraine do you wish people would see?
How you are always dealing with pain. It never goes away...never.
People just don't seem to understand it.It sure is a constant daily struggle managing and dealing with the pain. Thank you for sharing your thoughts and know we understand this battle. Wishing you a gentle day, Joanna (Migraine.com Team)
I agree k_nelson. I wish there were colors radiating from the pain so people could see the fiery red orange emanating from the left side of my head. You know, like a cartoon? When someone got near the fiery red orange they'd feel a zap and get to experience our pain for a little bit. Just so they could understand. After the little bit is over tell them this is what I constantly feel. So if I seem confused, slow to answer, bitchy, sad, depressed, tired -- it would be understood why.
Joleen1966,
YES...that would be AMAZING and I think truly enlighten SO many!! To make it even better the fiery red orange giving a little zap would help even more for others to understand! Thanks for joining in on this topic. -Joanna (Migraine.com Team)
I agree, well said
How bad the light sensitivity is. I always feel like all the people who have been so horrible to me, if they lived in my body for just a week, if they understood how much I hurt, they would get it. They would understand I wasn't lying just because this degree of sensitivity wasn't something they had heard of. I have to believe they aren't evil, just really uneducated. Even my doctors.
I feel the same way !! Just one day in our shoes would do it for most people !
I hope you have a pain free day.I had a Manager who actually understood and helped with accommodations so I could work and not have to leave my desk for the day. I worked for a large Big Box company. During my time there I had a few managers who really cared about me as a good employee. But, most just thought that they were headache fueled by anything other than a “ real migraine “ Those days I felt like Red Hot waves were rolling off my head. It was a delicate moment between being able to tough it out or drive the 30 min commute home and hopefully make it safely. I would usually get a family member on the phone to make sure I got home safely. Hoping the next day I was feeling better to go to work.
