My Migraines don’t seem to fit in with others…
Hi I’m new to this forum, well any forum, I have read some of the other posts and replies, and wanted to ask if anyone had the same symptoms of mine… I have had aura type migraines since my earlier 20’s I’m now in my late 50’s, with sometimes facial paralysis and my speech affected. I have been able to manage this over the years, and have taken the off the shelf type migraine tablets, and yes it has affected me, and the attacks came on a regular basis, I managed it by large quantities of water and the odd pill. However, in March this year after having a virus I started to get severe headaches, some of which felt like a javelin being stuck into my head, I also had lack of feeling in the left side of my face. I also had what felt like a fluttering or movement from back to front on the inside of the head, and a pressure which feels like a baseball cap being applied too tightly. These feeling continue all day and are still going over 8 months later.
I eventually went to the Doctor, and was initially diagnosed with Temporal arteritis which was not the case, and after MIR scans proved nothing wrong, was diagnosed with Chronic Migraine, and was given Topiromate, Carbamazapine, and Amitriptyline. I have also had Optical nerve blocks, and more recently botox. None have worked, and I ask myself if this is actually migraine, it is totally different to what I had experienced for many years. I am just about coping with work having had quite a bit of time off, the pain doesn’t stop it does fluctuate, and the pressure feeling moving over the inside of the head makes concentration difficult.
I read that some people stated that Migraine Sufferers were strong ….I agree, I try not to show what I’m feeling especially at work, also because you cant see it like a broken leg, and because I try and act normally you get some skepticism as to whether you have anything wrong with you.
Let me know if anyone experienced the same and what if anything you did to help….I’m getting to the end of what I can endure…and need to know what is going on …. The doctors have been great, but they are trying one thing after another, with no results…