41 Years and Still No Relief
Last updated: August 2022
I have had migraines since the age of 5. I'm almost 47 now. From 1980 until 2009. All the doctors would say I was overreacting they couldn't be that bad or that often.
My worst migraine
I ended up in the ER on August 17, 2009. It was like not any of the other migraines I had ever had. I had the worst pain in my right eye and wasn't sick to my stomach at all but I was seeing double. The doctor that was working that day threatened to have me arrested because I refused his quick fix then told his nurses to just give me some pain pills which I still refused.
Remember, I have had migraines since the age of 5 years old and I was 34 at the time. So the doctor and I were having a very heated argument because I was refusing his quick fixes I wanted to know why I was seeing double and experiencing unbearable pain yet no nausea. I had been there a few hours when the evening doctor came in to change shifts with the other doctor and heard us going at it so he stepped in to try to diffuse this situation.
A CT scan explained it all
He asked what was different with this migraine from the others I said I have eaten 8 Percocet and my head felt like if I drilled a hole in the side of my head I could relieve the pressure. I also told him I was seeing 2 of him and was not sick to my stomach. He said let's walk back and do a CT scan to see what's going on. He was just trying to get me the hell out of their ER cause I was making a scene.
As I stated he let me walk to the CT room and they started the CT. Within 15 mins they came back with a wheelchair and refused to let me walk because that scan showed a 12.5cm aneurysm that was leaking and he kicked into panic mode to get me from that ER to a trauma ER that could do emergency surgery before it busted and I died.
An aneurysm that destroyed so much
Needless to say, I got transferred to a bigger hospital and was in surgery for 7.5 hours, then in a coma for 2 days and home in 7 days. They removed the aneurysm as it was wrapped around the main membrane of my brain and had to put clamps in.
At the time, I had 3 small kids and I didn't remember anyone but my dad for 3 years. I lost my job in the medical field and had to get a lawyer and go to court which took 2.5 years to ever get my day in court just to get my disability. To this day my short-term memory is not the greatest. I now have seizures and am now allergic to over 51 different meds. And I still have migraines that are now worse than they ever have been.
All ERs and doctors think I'm there just drug seeking but keep in mind I don't take pain meds because they don't help. I did get that first doctor fired from ever working in an ER Department after the way I was treated and threatened to be put in jail because I refused a shot of dermal and Phenergan. I refused his 2 pain pills too.
My current situation
I now have found a neurologist and I went see him in the morning when I was on day 10 with the current migraine I have. (Yes, I have seen my regular doctor that says she can't give me anything). So I pray that he can help maybe get some relief because at this point in my life I am living as a quantity not the quality of life.
I'm tired and it's been a long almost 42 years of living in pain. I have at least 12 to 14 migraines a month they can last 3 to 15 days. And I sometimes get a rebound migraine from them. I basically now stay in my cool, dark, and soundproof room because of them.
More life, please
I would love to have a little bit of life without a migraine or headache. These migraines stole my life. I got divorced over 20 years ago and raised my kids with my parent's help after my aneurysm only because I did not remember them for 3 years after my surgery.
So migraines robbed my life. I pray tomorrow that the new neurologist can help. Because here in TN we have a shortage of neurologists it has taken a year to even get in at his office. I would love to be living with quality of life instead of quantity of life.
Thanks for listening. Please give suggestions I'm always willing to research anything that might give me 1 day without pain. Again, thank y'all.
In the past year, has insurance made it difficult to get your migraine treatment?