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Chronic Migraines and Tension Headaches before my 20s

My first intense headache was when I was 17 and I’ll never forget the day I got the worst headache ever, it felt like someone had hit me in the back of the head really hard non stop i started crying and my mom didn’t know what to do. A week later they went away and i thought maybe i wouldn’t get them anymore. I turned 18 and i was finishing up my my junior year of high school and I was missing almost everyday of school because i kept getting these intense headaches non stop and i would get them really bad during the middle of the night and they would go on till the next day. At some point i didn’t know what to do, I just wanted to drop out of school because i was falling behind. I ended up having to talk to my mom and had to tell her that i wanted to drop out and she got sad, I ended up enrolling in night school i would still get them no matter what.

I ended up going to the doctor because i was getting sick and tired of getting headaches nonstop i was on topamax but it ended up making my headaches more worst then what they already were my doctor ended up telling me that i was having an allergic reaction and had to stay away with any drug similar to it, so i was stuck taking ibuprofen 600 and 800 to help ease the pain a little.I finally ended up graduating but the headaches would still be there, At this point i turned 19 i had already quit my first job because i had to kept calling in sick. A few months go by and i hadn’t gotten a strong headache that i ended up talking to my friend and asked if she her job was hiring, i ended up getting the job just to later call in two weeks later with and intense headache that i couldn’t even get put of bed and had to quit, my doctor ended up sending me to a neurologist because he couldn’t prescribe me meds anymore since i was allergic. The neurologist ended up being no help i told her i didn’t want to take anymore pills because i had already been talking so many ibuprofen first thing she ended up giving me were anxiety med, which i found out from a doctor at the hospital because i had been taking the meds she wanted me to for a week later i told her about it only for her to tell me that we would back to those after i try new meds. I told her i didn’t want to take anymore pills and shes ends up prescribing opiates i told my mom i didn’t trust her anymore because she kept ignoring me and what i kept telling her.

I’m 20 now i don’t work and i still get headaches ibuprofen doesn’t help anymore and I’m not taking anything whatsoever I’m starting to get worried this could damage me since the headaches are becoming so constant but idk what to do anymore???? Please if anyone is the same please i would love to hear from you

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Comments

  • stan6508
    1 year ago

    Have you ever had orthodontic (braces) work?

  • Nancy Harris Bonk moderator
    1 year ago

    Hi kay09,

    Thank you for sharing your story with us. I’m sorry you’ve had such a difficult time, that sounds miserable. Let me see what information I can give you that may help.

    Try not to lose hope, it may feel like you’ve tried everything to treat migraine disease, but that may not be the case. There are over 100 medications (and supplements) that can be used to treat migraine disease. This article has more information that may help;
    https://migraine.com/blog/migraine-preventives-start/.

    Have you been able to identify any of your migraine triggers? If we can avoid and/or reduce migraine triggers, we may be able to reduce migraine attack frequency. Migraine triggers include but are not limited to certain foods, irregular sleeping patterns, dehydration, skipping meals. hormonal fluctuations, changes in the barometric pressure and more. We have more information on migraine triggers here; https://migraine.com/blog/migraine-causes-migraine-triggers/.

    The best way to do this is to keep a detailed migraine diary for a few months, which you an read about here; https://migraine.com/blog/keeping-migraine-diary-basics/. I kept a migraine diary for my son when he was about nine years old and was able to determine dehydration, sleep irregularities, skipping meals, dark chocolate, too many nitrates and staying in the sun too long triggered his migraine attacks. When we were able to get these triggers under control, he migraine attacks were reduced.

    I wonder if it’s time to seek out the expertise of a true migraine expert rather than a general neurologist. These expert doctors are board certified in headache medicine, which is different than being certified in neurology. Neurologists may be fine doctors but may have a hard time being an expert in one area because they treat so many conditions such as multiple sclerosis, stroke, epilepsy, Parkinson’s and others. Take a look at these articles about how these doctors are different and how to find one; http://migraine.com/blog/how-are-migraine-specialists-different/ and
    https://migraine.com/blog/really-find-headache-specialist/.

    I hope this helps!
    Nancy

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