Getting Diagnosed When You Already Have an Illness

I have lived with chronic pain most of my life so at first the tunnel vision and pain were just part of what I struggled through. Then my symptoms changed.

Noticing new migraine symptoms

I was losing speech and confused. Numb on my left side and tingly. They thought I was having minor strokes. My eyes hurt so bad and the visual anomalies became permanent. They sent me to an eye Dr, who said I was going blind. This all went on for a very long time before they thought of migraine. I have several autoimmune disorders and my rheumatologist and a neurologist with her practice diagnosed chronic migraines. I have many types, in fact, they believe I live in a migraine state.

Migraine without pain

Some are even pain-free but I am still in the out-of-it stage. The best solution we have come up with is I take amitriptyline daily to dull me and enable me to have some self-care. I had to go on disability years ago. I just live in a dark world because almost any stimulation has become too much, ie. light, noise, smells.

By providing your email address, you are agreeing to our privacy policy.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Join the conversation

Please read our rules before commenting.

Community Poll

Do you feel comfortable advocating for yourself to your healthcare provider?