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And they still don’t know what’s wrong with me…

I found this site through one of my favorite authors who suffers from migraines herself, so I’m thanking you for the space for letting me write my story.

It all started last year; I was diagnosed with chronic migraine with aura and from that moment on, my life turned to a literal living hell.

That 27 of September changed my life forever:
As I moved to Buenos Aires city in order to get my degree in Legal Translation, I left my family and friends in Trelew-Chubut (this is Patagonia). Little did I know I was going to experience these kind of things in my seventh year of adulthood. This was the third time I was being hospitalized in a month (and truth be told, being alone it’s not a funny thing.) As I did every time I was being taken to the ER specialized in the neurological area, I had my MRI, my CT and other tests with me…the thing is that that day, the ER physician told me that I had a severe congenital malfunction and I could die any time soon.

A 23-year-old young woman, alone, with her parents 1500km away, I can tell you, it was the worst thing that could have ever happened to me. The psychological trauma I carried with me those months until now made my life even worse. I didn’t know I was suffering from post traumatic stress, but today, after seven months, I had another intervention and this neurologist told me the real deal.

To make things worse, since January, I’ve been suffering from vasovagal syncopes and near fainting experiences. The doctors don’t know what’s wrong with me, I’ve been tested all over again, and now I have to wait for the last results.

I think the worst part is when I have to be hospitalized due to the fact neither the treatment nor the painkillers work. And the thing is that every test that I had had, up to now shows, no signal of malfunction or anything.

Now, with 24 years-old, I just want to have a normal life. The doctors changed my pills because I cannot concentrate or study. I know I’m not the only one who suffers from migraine, but I’m just so sick and tired of this. Sometimes the pain is so unbearable, that I just want to take my head off: nothing works, and everything bothers me (lights, sounds, smells…just kill me already!!)

I know I have to be strong, and thank God I have the support of my family and friends…but thank to this experience I truly learned who can love you fully and completely. Those who doesn’t understand what triggers or what does it feel to have a migraine attack, they cannot understand or cope with people like us, and they tend to leave (like they say “Better by far you should forget and smile, than that you should remember and be sad”.)

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Katie M. Golden moderator
    5 years ago

    Sheila,
    My heart goes out to you. I can’t imagine being that far from your family when your health changes so dramatically. You sound like a very strong person and I know you’ll be able to handle this.

    Having chronic Migraines can be very frustrating because there are no definitive tests to prove the diagnosis. It won’t show up on an MRI, CAT scan or Xray. But those tests are needed to rule out other causes like a tumor or blood clot. So don’t be disappointed when the doctors say all your tests came back normal. That doesn’t mean there’s nothing wrong with you.

    I’m sure you’re not going to want to hear this either, but it’s important to know that it can take a long time to figure out what medications you respond to and which ones you don’t. There are so many different combinations of preventative and abortive drugs that your doctor can prescribe so it may take some time. It’s absolutely frustrating when all you want is a cure right now!

    You may benefit from reading our 7 Part Migraine Management Essential Series. This link has links to all of the topics that include Education, Doctors, Preventative and Rescue Treatment, Support, Abortives and Triggers.

    http://migraine.com/blog/migraine-management-essential-education/

    I hope things get better for you soon. Take care of yourself!
    -Katie

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