My Migraine Story

I was diagnosed about 4 years ago, although I’m sure I was having migraines long before and just treated as sinus infections and allergies. After taking too much medication for the wrong ailments, I think the first problem I had was a rebound headache. My “first” migraine lasted about a month and a half until the pain stopped. My doctor tried many different types of medicines but couldn’t figure it out. Then, someone I worked with suggested a neurologist who was able to come up with the correct medication within a few months and the pain finally stopped.


After reading stories, researching and educating myself about migraines, I consider myself one of the lucky ones. My main cause is from arthritis in my neck, but I also have many food allergies and weather triggers. I’m able to control the pain on a fairly regular basis and at this time, it’s normal for me to live with the adjustments I’ve had to make in my life, but I feel the migraines have ruined my life. I’m close to 50 now and I had gone back to school, hoping to get my degree. Because my medication makes me so tired, I can’t take night classes any longer. I tried online classes, but they don’t work for me. I also have gained 40 lbs and can’t do too much physical exercise, although I do some to try to keep from gaining more. I have to go to bed at an early hour during the week so I am awake enough to work in the morning and just don’t have much of a life at all. My close friends understand, but anyone new just doesn’t understand and think I’m either making things up, exaggerating or just don’t want to join in their social events.

The pain of the migraine is so overwhelming, although it’s really depressing, it’s worth it to stay pain free. I just wish it had an expiration date 🙂

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Migraine.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (4)
  • Kanani
    5 years ago

    I hear you friend, I hear you!!

  • joe merchant
    5 years ago

    Roberta,

    Thank you for sharing. I’ve just stumbled across this site; and for what it’s worth; am really gratified to know there are others out in the world who ‘get it’.

    My migraine story started in 2001. (June 26th @ 7:30 at night), actually. That’s when the migraines I had been getting 2 or 3 times a week jumped to full-time. It’s not left yet. Just goes up and down the pain scale — taking my mood and life with it.

    48 medicines, 12/13 doctors later; and I had to find this site to see that others experience similar issues.

    Thankfully, I have a wife who understands – mostly through seeing me march through days dealing with this thing. I have two kids; both also understand their are days and times where I just -can’t- play outside. Breaks my heart every time I can’t do something with them. Small hurts like that — can hurt more than the migraine, if that makes sense.

    Light always makes my migraine jump up the scale – so, I’ve adapted by wearing sunglasses all the time. The comments I get are daily. I’ve been fortunate enough that most who work with me on a daily basis are used to me in sunglasses — so those comments are few. It’s the ‘outside’ world – those I don’t interact with – that make the snide remarks, look at you like you have three heads, or simply stare. I don’t care. Let people be cruel. I suspect if they had to deal with this thing; they’d be alot worse off than I am. I can still manage to smile and joke. I have too – it’s a coping thing.

    Anyway; since this is titled “My Migraine Story”, I figured I’d share mine. Thanks for the inspiration. Many people are worse off than I am. They’ve had it longer – or whatever. I’m just glad that I’ve found others with the same complaints and issues; it’s’ tougher when you think you’re fighting this thing solo.

    Best,

  • Katie M. Golden moderator
    5 years ago

    Roberta,
    Thanks for sharing your story. You bring up a really good issue in your own journey to figuring out the cause of your headaches. It is fairly common for people to think they have sinus headaches when in fact they have Migraines without Aura. In fact 42% of patients with Migraines are incorrectly diagnosed by a doctor with sinus headache. Here’s some more info about it.

    http://migraine.com/migraine-types/sinus-migraine/

    I can also sympathize with you about having to quick school. I had just started a night time Masters program at Georgetown when my Migraines became chronic. Not sure I’ll ever get to go back. But I try to focus my energy on something else, even if they are smaller, attainable goals in comparison to earning another degree.

    Weight gain is also a common struggle with Migraineurs. How can you exercise when it takes all your strength to get out of bed? You need all of your energy to go to work so there’s none left to take a walk. But I encourage you to continue to do it on days when you feel well enough. It will help you feel better. I wrote recently about my personal struggle with exercise. In no way can I say that I have it conquered, but I feel like I’ve accomplished something.

    http://migraine.com/blog/crunching-my-way-to-the-zoo/

    I’m glad you have friends who are supportive, that’s so important. Like you, I too wish this had an expiration date! Well said!

  • Roberta author
    5 years ago

    It’s nice just to hear someone say they understand. I know it’s always meant well, but suggestions on what to try and how to change my life, make me feel as if I’m doing something wrong. So, thank you for simply understanding. It makes me feel stronger. 🙂

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