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First Time Tracking

I am taking a moment, while the symptoms are low, to jot this down, because it seems I don’t have many pain-free hours.

As many people who are affected by chronic migraine know, sometimes it can feel like you’re never NOT in pain. Sometimes it’s a game of figuring out, “can I actually eat today? How about those plans I made, will those be happening or will I be coming up with another clever way out?”. It isn’t a fun song to dance to but we’ve learned the moves by heart. Well, I found this site and began to question how often I really was doing the dance, so I began tracking my migraines on the 13th (it’s the 22nd, just in case I edit this before I post it).


So far I have had 1 attack-free day since. I have been astounded at the results. Baffled really. Here I thought I was making a mountain out of a molehile but no, I am literally always either in pain, having auras, or recovering from a migraine.

I’m trying to not let the voices of my abusive parents climb on top of me: “the more you think about it the more it will happen, so if you track them you’re just asking for more attention”. That isn’t true, right? People track migraines and seizures, don’t they? That’s normal, expected, encouraged?

I just never know anymore.

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Comments

  • parmes author
    2 years ago

    Thank you both for your comments. It’s good to be able to have a community to lean on in the dark/unsteady times.

  • GardensatNight
    2 years ago

    So sorry you’re having so many bad days at the moment. First, my doctor, insurance companies, and just about everyone involved with my migraines wants specific data. So tracking is the norm with this disease.

    Tracking also helps me feel like I’m not losing my mind. Sometimes when you’re in the midst of a migraine it feels like it’s been FOREVER and will never end and it takes me being able to pull up that calendar and tell myself that I will come out of this to provide that reassurance. On the opposite end of things, it helps me to know I am NOT crazy, am NOT exaggerating when I am having weeks and months of terrible days and a bad pattern. I like data.

    Data also helps you identify things that trigger your migraines so you can hopefully avoid them, and if that isn’t possible, maybe shelter your brain from other activities when a bad trigger is coming. Weather is a bad one for me. You can’t avoid air, but if I know a cold front is one the way, I don’t stress my head out by trying to use my eyes too much that day because those two things in combo=certain migraine.

    Tracking everything I ate and doing an elimination diet also helped me identify how many foods actually triggered me horribly.

  • Luna
    2 years ago

    Any competent doctor will want to know frequency and symptoms.

    https://migraine.com/blog/keeping-migraine-diary-basics/

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