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Hitting rock bottom

Hello everyone
I have recently been diagnosed with hemiplegic migraine headaches. I have been working as a healthcare professional for 13+ years ,today was the worst day because I had equipment delivered to my house and I just felt like I am not able to cope any more from being an independent woman who enjoys going out driving and taking care of herself .and now I have to rely on others.

I looked at equipment and thought well okay this is it! Are there people who are going through something similar at this moment? I have to stay strong for my kids and I just don’t see a light at the end of the tunnel at the moment. I get a migraine each day or at twice a day and and I’m left with left-sided weakness , dizziness I can barely walk or focus. I just need to know how anyone else is coping with this, somebody help me out just to understand what this is and if it will ever go away thank you

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  • Not-Again
    2 years ago

    You are not alone in what you are going through. Two days ago, I got home from work (wish I didn’t have to work, but I do), and had to make the decision to simply try to eat something pre-made and go to bed. I go through periods of grieving the loss of what I used to be able to do before migraines entered my story. I used to say…who I was…before migraines entered. I am divorced, no kids, little to no support from my family, miss being involved in church and volunteer activities. My way of coping is to treasure those few moments where I can do arts and crafts, enjoy and spoil my dogs, plan little treats for myself when I’m up to it. I also don’t deprive myself of delivery services or taxi services if I truly need it.

    I don’t know how on earth you manage migraines and have kids. I couldn’t do it. That said, maybe the way you can be the strongest for your kids is to take the best self-care of yourself that you can. Remember there is no guilt in migraines – we didn’t ask for them. I don’t even look at the tunnel anymore. For me, I accomplish life breath by breath, step by step, day by day, and it doesn’t go any further than that. I recently found an app and Facebook page called Calm and it is helping me.

    I pray as I write this that grace, peace, hope, and positive affirmations will come to you. I pray you will be comforted in means and ways not thought of before. I pray you will be kind to yourself and know that at the core – you are still a beautiful heart and soul – something migraines can never take away. Thank you for sharing your story.

  • biri author
    2 years ago

    You’re an angel sent from above thank you

  • Joanna Bodner moderator
    2 years ago

    Hi there biri,
    Thank you for reaching out and sharing what your story. I am so sorry to hear how difficult things have been for you. We know just how difficult it is to remain positive and finds ways to cope when you dealing with constant daily pain & debilitating symptoms. Please know you are NOT alone in this! In fact, many members have shared their personal story as well living with Hemiplegic Migraine. When you are feeling up to it, take a look at some of their stores – I hope this will provide you some piece of mind.

    Additionally, are you active on Facebook? If so, feel free to take a look at our page where you can connect with many others who may be enduring your same experience.

    Please don’t give up hope for better days! Know we are always here for support & to lend an ear.
    Joanna ( Team)

  • biri author
    2 years ago

    Thank you much appreciated . I’m glad I’m not alone

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