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I have had migraines my entire life. They slowed as I aged until recently (2 yrs ago). They have taken up residence behind my eyes. I can no longer drive after dark, I can’t read for more then a few minutes at a time, even driving during daylight hours takes its toll. Neurologist has me on daily meds, tried IV fusions, now botox. No relief yet. I even do my old stand bys. No relief.

Anyone experience this? Anyone find relief?

https://migraine.com/blog/looking-for-a-migraine-specialist/

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Comments

  • Nancy Harris Bonk moderator
    3 months ago

    Hi NikkiAnne,

    I’m sorry you are having such a difficult time right now. It’s so frustrating when we’re in continual pain.

    I’ve seen my share of neurologists, but am finally making progress with the help of a true migraine/headache expert. These doctors may be different than neurologists in that they are board certified in headache medicine, which is extra certification. These articles discuss how to find an expert doctor; https://migraine.com/blog/really-find-headache-specialist/ and http://www.ucns.org/globals/axon/assets/12884.pdf.

    I’ve been getting Botox since 2016 and am seeing progress. I was very hesitant to get it, but it’s really making a difference in migraine attack frequency. It can take three, sometimes four rounds before we see a difference.

    Any chance you take something on a daily or near daily basis to help relieve this pain? Sometimes when we take pain relievers, and/or migraine medications (triptans) whether they are over-the-counter or prescription, it increases our chances of getting rebound headache. If we are in a rebound cycle, our migraine attacks may be more difficult to treat and we can end up in a daily cycle of endless pain that too is hard to break. Here is information on rebound; https://migraine.com/living-migraine/stop-rebound-headaches/.

    I hope this helps!
    Nancy

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