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Meningitis+encephalitis headaches

I contracted first meningitis age 35 developed a rash on back of neck,diagnosis, encephalitis. I am now 58 and still suffering from debilitating headaches, New doctor is interfered with my meds ( oral morphine and diazepam) which were making life bearable,also have cranial osteopathy, which also helps.(which I pay for myself. Recently had full gallbladder surgery and the consultant reviewed my history, putting me on oral morphine 5ml 4times a day same thing with diazepam. First time in 6months my headaches were bearable. New doc has quartered all doses of both, even though I’ve told him this works for me. Since January this year I’ve also started getting Labrynthytus, which apart from the dizziness and imbalances also causes earaches and headaches too. All of this has fell on deaf ears, I’ve been told as I get this frequently it could cause meniers disease!! I feel he isn’t listening to me, just interested in general with getting me off all my medication. Anybody else having same problems? Would love to hear what you have to say, What if anything can be done about this????

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  • Hansel author
    3 years ago

    Thank you for your advice and support, daw49, also DonnaFA. I the only time will tell, I had to talk about this with my husband, who went with me to next appointment, needless to say, I’m back on my meds, having had meningitis I don’t think some doctors realise how much this effects your life. I’m so relieved that I have a wonderful husband who has had to put up with me when I forget things,or mix two-thirds of a conversation and make my own stories up and fully believe that was what was said. I’ve felt isolated and can’t remember half of my life. Lots long term memory gone, short term memory loss horrendous at times. So to all of headaches sufferers, I hope you find a good doctor! Mine now understands, because of my husband and best friend. 🙂 please ask for a proper neurological examination. These people are not going to stop till they find what works for you. God Bless.

  • daw49
    3 years ago

    Hi Hansel, it seems to me when a combo of Meds are working for you, why interfere? At times opioids are the only thing to stop a blaring migraine. I realize the difficulty for Dr. in knowing when to prescribe a narcotic. However, if we the migraine sufferer need legitimate help, it should be able available to us.

  • DonnaFA moderator
    3 years ago

    Hi Hansel, I’m so sorry to hear that you are feeling unheard by your doctor. Please read Is It Time For a New Migraine Doctor? (which is also linked above). It will help you find a board certified headache doctor in your area.

    We’re glad that you’re here and we’re always here to share information and support. -All Best, Donna ( team)

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