Migraine Mania!

Oh where to begin…such a long and detailed story to tell. I will do my best to be as accurate as possible because lately my brain feels like it is made of mush and I have no memory capacity. I am a 42 year old female who remembers my first migraine being at the young age of 9 at a softball game; had to be taken off the field by ambulance and to the hospital.

Unfortunately was not diagnosed with migraines till later in my teen years, roughly 14 years old. Since that time my migraines have increased in intensity, severity, and frequency. I was able to obtain my master’s degree s a Cytologist and had a lucrative career for 15 years while dealing with the every changing migraines and pain. My first employer employed me for 14 years and I had to obtain an FMLA and was basically protected from being fired; my manager thought I was lazy and did not want to work; even though my statistics and workload accuracy spoke for itself. They finally got their break when the economy went down and they had to downsize my department….my name was the first on the chopping block. I was crushed..I had worked all my life to be independent and make a good living helping others in the medical field. I loved what I did.

I then obtained another job but that barely lasted a year because I missed too many days from work and was an unreliable employee. Since then I have not worked in almost two years. I filed a disability claim and was denied; of course; because migraines are not a true disease! Yeah Right! If only they felt our pain one day in their lives would they ever question our disease/disability again? I have had to obtain a lawyer and hopefully it won’t take years to get approved as my financial situation is not getting any better. Well, in all those years I have consulted neurologists, PCP, chiropractors, therapists, herbal and non medicinal remedies and to no avail I now have intractable daily migraines.

My PCP and I agreed that it was time to involve a specialist after years of getting no where with treatment plans and numerous drugs I can’t even keep track of how many and what they all were. I saw a migraine specialist neurologist that is also board certified in migraine specialities; so that sounded positive. He is located 1 1/2 hours from my home and we decided to be more aggressive and admit me to the hospital, detox me from all the meds I take daily now (dilaudid, stadol nasal spray, percocet, maxalt mlt, tigan, etc) and hopefully insurance will pay for botox injections. I am scared and not the least bit hopeful because of all the other failed attempts at controlling this disease/disability. I am trying to be positive but I now also suffer from severe depression and am being treated with meds from therapists and psychiatrists; mainly because my entire life was taken from me from this condition. I am an insomniac also and we all know that does not help a migraine sufferer. I have missed so much of my life and things that I can’t do or attend…..I have two lovely granddaughters and a niece that I adore equally and cannot do the normal things with them….I try and push myself and then pay for it later. My last statement is one thing that I would like the would to hear loud and clear: A DUCK IN THE WATER APPEARS CALM AND SERENE BUT WHAT YOU DON’T SEE ARE HIS FEET STRUGGLING UNDER THE WATER TO KEEP HIM AFLOAT……JUST BECAUSE I LOOK NORMAL DOES NOT MEAN THAT I AM….I STRUGGLE EVERYDAY AND IF YOU KNOW THAT I SUFFER DON’T SAY STUPID STUFF LIKE TRY EXCEDRIN MIGRAINE! Okay enough ranting….I am that duck in the water and I am struggling and sinking.

Oh I forgot to mention they are going to do the DHE infusion treatments too. I have read equally good and bad about this treatment, but it is what scares me the most.

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Comments

View Comments (8)
  • Sharon Henderson
    7 years ago

    Dear Suffering, I have the Medicine that will “CURE” your Migraine Headaches! It is A Blood Pressure Medication called… Calan SR240mg. My Husband had Migraine Headaches for 30 years, until my Mother found a Medication that had been used on Stroke Patients, and found out it was helping those with Miganine’s. From the first time my husband starting taken the Calan SR240mg. Everyday, and has never had another Migraine Head since! I had seen my husband suffer for years, and I would put hot cloths on his forehead before I would get up before 5:00 am to get ready to go to work, and I prayed that he would get some relief, but if the Migraine was real bad, and most of the time they were, and him throwing up would help. God Blessed us by showing my Mother this Blood Pressure Medication in the Enquirer Magazine, where most of the things were not true. Our Family Doctor put him on this Blood Presure Medication called “Calan SR240” even though he never had high blood presure, it would not hurt him, and trying it could only help! May God Bless you as he did my husband, and it will give you your life back! Please call me @ 843-340-6047-Anytime, or email me @ Sharhenders@aol.com or facebook anytime. God Bless you, and Please let me know how you are doing. I Pray that this will also help you, but you will have to take it everyday, not just when you have a Migaine. God Bless you, Edward & Sharon Henderson are praying for you.

  • Kathy Jo Horton Bishop
    7 years ago

    your story sounds so much like mine….I finally got my disability approved but am do for a re evaluation in 2013…..not having much lick controlling ending or preventing them..but have not given up hope…..because we are all so different like our migraines…..there has to be something or a combo of somethings that will make life more tolerable……my hardest issue as of yet….my main support , my husband just recently died from cancer and I now have to figure out how to be a single parent of two teen daughters and still deal with the migraine issues…..I will pray for you and all of us that we find the daily strength to deal with our condition of migraines….don’t give up hope…..have faith……I’m here if you want to chat or just vent…..a fellow friend and migrainer…KJ.

  • Linda Castellano
    7 years ago

    Dear Migraine Mania-your health history is exactly like mine I cannot believe it I even started at the same age as you(9)-I am know 45 and have not been able to work for 16 years-I can barely make it to the bathroom to vomit-(sorry) forget about trying to get out my front door to a real life-totally impossible-but I want to Thank you for your loud and clear statement about being like a duck just floating around but working so hard trying to stay above water you could not have said it better the only thing I wanted to add is that ducks always seem to have travel in a group and stick together and that is how I feel about us dealing with our illness we all have the same pain and we are a group and I am relieved to know I am not alone struggling to keep above the pain that is drowning me inside.

  • Staci Gardner Carey
    7 years ago

    This is also the story of my life, except that I was never able to finish college or hold down a job. The botox is working for me and I now have health insurance that pays for it, hopefully one of these treatments will come through for you….God Bless you, I’m having a migraine right now and due for Botox injections tomorrow. Even if they do work, they wear off before next injection time, but at least time in between and quality of life is greatly improved.

  • Sara Borders
    7 years ago

    I just love your duck analogy! Your story rings true–I’m in the same scenario, except I’m 30 and have been out of work for over a year with migraines that were once episodic but are now chronic. It’s been a struggle medically, financially, emotionally, mentally, and I have two little ones to take care of, too. I lost my insurance so I’m waiting for Botox, as that is one of my last options [been through it all just like you]. I wish you the best of luck in your treatment!

  • Suzanne Johnson
    7 years ago

    Reading this was like reading a story about my own life. The only difference is that I was approved Medicare disability, thank god. You get to a point after so many years of trying all the meds, treatments & new doctors that you just dread the thought of another. That’s where I am. Tired of trial & error and sharing/accepting my life with migraine disease. I love your duck in the water reference, its so very true and vivid enough for others to understand. I will be sharing it. I wish you the best with the DHE infusion treatment. Please share your experience with it whether good or bad. Good luck!

  • Katherine Corley
    7 years ago

    I have had the Botox treatments every three months since October. My insurance covers it. It has helped and I am glad not to be on so many drugs.

  • Ellen Schnakenberg
    8 years ago

    tbrooks,

    Your duck analogy is perfect. I’ve heard it before and it’s a favorite right up there with The Spoon Theory.

    Hang in there okay? I see some good in the midst of your story of difficulties. First off – you’re still here. If you have made it this far, that means you can make it today. You made it through the last minute, you can make it through one more minute. Yes it’s hard. It may be the hardest thing we ever do. But it is worth it. It really is.

    Another thing I see here is also positive. You have been on a lot of drugs trying to control your situation. Some of these drugs you’ve listed can actually end up causing the pain you’re taking them to treat. It’s a strange self-perpetuating phenomenon, and very, very common. I’m really hoping that getting you off of them and on another course of treatment, hopefully with some preventatives might really begin to make a difference in your life. Please understand that this is going to take a while. You didn’t get this way overnight, and it’s going to take a long time to get better. Each step, no matter how small, is a step in the right direction. Even a medication failure is good because you have learned something that won’t work and can move on to something else. I learned something a long time ago when training horses – you may not be able to control the horse moving, but you can control the direction. Forward IS a direction. It really applies to Migraine disease too in so many ways.

    I would love for you to join us in the forum http://bit.ly/fsfTeo and let’s talk about some of the things you’re experiencing right now. If you have a question about some of your meds or even your course of treatment, that’s a great safe space to go for education.

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