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My story, well I am not even sure where to begin…

My story, well I am not even sure where to begin. I have had migraine headaches I guess since I was sixteen . I thought everyone did. Just thought it was normal. Then at eighteen I got into banking. They became slightly more frequent. At 25 I had my first child, a little more frequent, (keep in mind this is just what I am blaming it all on in my mind) at 31 my second child they were more frequent. By 41 I had some degree of migraine every day of my life. To be honest it was probably long before then, I just didn’t know what it was. For years I had already been on topomax daily , trying to control it and it already wasn’t working. I had emergency migraine pills which I was using frequently . So here I am now 48 years old and I have an average of a 7 or 8 migraine everyday of my life. I went from a banking career where I made almost 70k a year to being lucky if a can work 15 hrs per week . My memory is horrible , I went into a store just recently, left my car running with the keys in it …. on top of all this the now have decided they think I have fibromyalgia. Such joy! Treatment wise they have exhausted drug wise all they want to try…. so now we are on to Botox treatments … just completed round two … some minor improvement this time . But nothing earth shattering yet . It has maybe shall we say taken the rough edges off . But that’s about it , dulled the pain at best. So, that’s my story 🙂

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  • Dana
    3 years ago

    Kelly, very similar story, migraines started at 16, left a very stressful but well paying banking job to work as a patient tech in a pediatric hospital (my salary was cut by more than half) but because we worked 3 12 hour shifts it was much easier to switch a shift when I was in “blow my brains out”agony. Fast forward six years and I was attacked by an 18 year old patient, by the time anyone had gotten to me I had be kicked and punched in the face several times and choked. Game over. I have not worked in over 2 years, am on Topomax and Lamictal and emergency meds generally don’t help. I have had spine injections, DHE infusions and stopped Botox after the 3rd round (no help at all).
    I will say to the person who is considering Chiropractic care…GO FOR IT. It helped tremendously, but my insurance no longer covers it. I have applied for my medical marijuana card, so embarrassing (I have never smoked marijuana in my life)! But I hear it can be a miracle and at this point, I need one. I, like all of you am plagued with daily “headaches” as my husband calls them and when they are full blown he doesn’t understand why I sometimes feel the need to punch myself where the pain is. We are in this together and sadly the people we need to understand it just can’t. I have terrible depression, but when I found this site I found some people who do “get it”. Wow, sorry that was long and really went off the path of discussion.

  • maru
    3 years ago

    Hi Kelly,
    I am with you, similar story with minor changes, started at 13, no kids, now almost daily and going on my second for botox, very minimal improve, they said second round would be “much better”, topomax daily for years, two spine surgeries, migraines got much worst and since spend 3 years in bed due to lower back problem, neck became an issue with hernias, etc,… adding more to migraines and tmj all on same side of my migraine spot.
    In any case, this is really bad. I met a chiropractor who specializes in migraines… I have never been in any chiropractor in my life, not sure even if I will try but not many options…. will update if I decide to do it. Thanks for sharing and on next strong migraine remember you’re not alone… 🙂

  • Not-Again
    3 years ago

    Hello! My migraines have gotten worse over the years and the symptoms have changed as well. I became concerned when I started getting fibromyalgia – wide spread pain, especially in the joints and larger muscle groups. May I ask how your doctors determined it was fibromyalgia? My doctors tell me they don’t have a definitive diagnosis but I know it can be a co-morbid disease with migraines. So glad to know you are feeling some improvement – anything is better than nothing! Best of luck!

  • DonnaFA moderator
    3 years ago

    Hi Kelly, thanks for being part of the community and for sharing your story. I’m so glad to hear that you are experiencing some improvement and we’re sending all good thoughts that you continue to improve. -All Best, Donna ( team)

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