Pain Is My Life

By ljsf

1 min read

I have been suffering for days with this migraine. Today it became super intense, sending me to my room. Nothing helps.

It is searing through my left cheek up to my “migraine“ spot, which is my left eye up into my head like a knife. The doctor I am seeing won’t keep treating me unless I go in person. He is an hour away. I barely leave the house, never mind take a highway trip.

There is more I want to say, but I can’t stay on this iPad. Hugs to everyone else who's life is pain.

- Linda

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Nancy Harris Bonk Moderator
Hi <inline-mention username="ljsf" user-id="3804548"/> I'm so very sorry you are in extended pain. It certainly makes things more frustrating when we're unable to get to the doctor. Is there anyone closer to you? Would the doctor possible call in a steroid dose pack to help break this one? Please keep me posted, Nancy Harris Bonk, Patient Advocate/Moderator <a href='http://Migraine.com' target='_blank'>Migraine.com</a> Team
Rebecca C Moderator
<inline-mention username="ljsf" user-id="3804548"/> How are you doing today? Has your pain eased from your migraine? were you able to make it to your treating physician's office? Honestly, I would be the first person to head to an Urgent Care facility for treatment that is in my insurance network. I wish I knew what else to say. You are in my thoughts. Hoping you've gotten treatment and found relief. Please keep us updated. Fervently - Rebecca (comm advc)
ddosunmu Member
If your insurance allows for telehealth visits with a dedicated telehealth provider that might be the way to go. I totally get it when I am in a pain chain were it won't go away I think it is somewhat cruel for doctors to expect us to get to them to get emergency treatment. I luckily have a good doctor and support staff who will usually get me what I need without a visit because of my history. I even worked out with him how to have a mini migraine cocktail on hand to help reduce the need to go to urgent care or ER for resolution of status migraine. 
1. Holly Harding Moderator & Contributor
 <inline-mention username="ddosunmu" user-id="3722605"/> Really appreciate your ideas here and resonate with them on many levels. I do think that getting to the place that a practice will prescribe that kind of migraine cocktail to have at home happens once trust is built and a solid relationship is gained with our practitioner and they grow to see and appreciate the severity of our condition and perhaps witness or partner with us as we navigate several difficult trips to the ER to prove how dysfunctional those outings are. Wonderful that you have that kind of relationship and connection with your specialist. It's something we all hope and strive for and is the example of a healthy partnership between doctor and patient. Thank you for sharing this. Warmly- Holly <a href='http://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
Holly Harding Moderator & Contributor
<inline-mention username="ljsf" user-id="3804548"/> - Hi there, Linda- just checking in to see how you're feeling. We are thinking of you and hoping the severity of that recent attack has subsided or at least become more manageable. We are with you. Warmly- Holly <a href='http://-migraine.com' target='_blank' rel='noopener noreferrer ugc'>-migraine.com</a> team.
mellies Member
I am so sorry to hear this sad story. I pray things are better. My prayer is always, " I know I will be healed someday....God get me thru today" I repeat that over and over and over. Big hugs!!!!
1. Nancy Harris Bonk Moderator
 Hi <inline-mention username="mellies" user-id="3918374"/> Thank you for sharing your positive affirmation with us! I tell myself over and over "this too shall pass." Wishing you a low pain day, Nancy Harris Bonk, Patient Advocate/Moderator <a href='http://Migraine.com' target='_blank'>Migraine.com</a> Team
rachel20 Member
Hang in there. I am feeling discouraged too cause my migraines have increased and I had my worst one yet. 10 on the pain score, nonstop crying, crawling on the floor, mumbling/cant think of words while on phone to advice nurse. It was so scary but it did pass. I hope you are able to get to your doctor and get some more things to try. I am only starting to try different things to help mine cause I had to give up a desk job and am trying to keep my driving job (boss has been very kind and understanding). I am telling myself to keep trying new stuff, it stinks there isnt one fit treatment for us all. Isnt it superman that says being brave doesn't mean you arent scared! Sending gentle hugs.
1. Nancy Harris Bonk Moderator
 <inline-mention username="rachel20" user-id="3873727"/> I'm so sorry I didn't see your post until now. Thank you for sharing your update with us. I understand how frustrating it is to live with migraine and wanted to let you know we're here for you. I hope the month has improved. Will you let me know how you're doing? Nancy Harris Bonk, Patient Leader/Moderator <a href='http://Migraine.com' target='_blank'>Migraine.com</a> Team
ljsf Member
Thank you all for responding. I guess I haven’t been very good at navigating the site until now. Unfortunately nothing has changed except I do have a very sweet, local neuro. Unfortunately she is not a migraine specialist but is doing her best until one comes on board in July. Meanwhile I am going to try Botox again (4 th time). I am also planning a cervical spine ablation as my lumbar one has given me some back pain relief. I am just coming off a prednisone taper but the migraine came right back. No new meds to try. Linda 
1. Nancy Harris Bonk Moderator
 <inline-mention username="ljsf" user-id="3804548"/> I think you're doing a great job here! We love hearing from you. Do you have any plans for the upcoming weekend? My fingers are crossed you don't have too much pain. Nancy Harris Bonk, Patient Leader/Moderator <a href='http://Migraine.com' target='_blank'>Migraine.com</a> Team
ljsf Member
Thanks Nancy, Mostly just hang out at home. Check my plants in the garden, have my husband home an extra day ( rare) and let my son go with his worker on Monday.

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